Anyone had an appointment with Dr. Mensah?

[Bdeep86]

I have been looking into him and some of the research done by Dr. Walsh. I am wondering if anyone has had an appointment or got anywhere with Dr. Mensah. He is incredibly expensive.

 

[minkeygirl]

I searched here and found a post where @Misfit Toy mentions the mensah institute but not much else

There are several other threads that mention dr mensah. Just type his name in the search bar.

 

[Bdeep86]

Yeah I agree. To be fair I don't think he markets himself as being a CFS doctor. Mostly just someone who practice the Walsh protocol, think he usually works with schizophrenics and Bi-Polar sufferers.

 

[Misfit Toy]

I deal with one of his protege and I don't have enough to say...as in report. Just started on a protocol three days ago, so we shall see. I don't know how much he is, but I do know that his protege is less and she follows his ideas, etc.

I think he, or they do treat CFS patients as what they deal with overlaps with this illness. Light sensitivity, Pyroluria and imbalances in body and brain.

Many imbalances in nutrients and supplements can cause major problems, as even written up by the Mayo Clinic...for example, lack of zinc, high copper kinds of stuff.

I'm a guinea pig right now...will keep all informed.

 

[Bdeep86]

I will definitely be interested, I have heard about the women are you are talking about. I believe their fee is incredibly high to see either of them.

 

[Misfit Toy]

Bdeep-she gives a twenty minute free consult and charges $75 per half hour, which for this kind of stuff, is not expensive compared to others I looked up. The most expensive part was the lab.

I'm finding that no one is cheap who really treats this.

Someone just paid $8,000 to see Cheney two months ago and she still has not heard from him about results. So, to me...this is a better alternative even though I wouldn't go to see Cheney either. I don't think he's into this anyway...

My point is....no one's cheap who deals with this. It's too complicated.

 

[Firefly_]

I think most of the costs associated with going to these specialists are labs. If you break it down your GP charges over $100.00 for an average time of 8 minutes for a visit. My CFS specialist charges $515 or something like that for a visit that can last hours. And he knows what the heck he's talking about...worth much more imo.

 

[Bdeep86]

@Misfit Toy who are you working with? I know there is another woman in his practice and then another nutritionist who works with his practice but isn't a part of mensah medical. I called in to Mensah medical and was quoted something significantly higher than those rates. Literally over ten times that.

 

[Bdeep86]

Firefly have you received any real benefit from this doctor? What protocols do they use? Just wondering. $515 is expensive, but still, the quote I got from Mensah Medical is still more expensive than that by close to double.

 

[Misfit Toy]

@Misfit Toy who are you working with? I know there is another woman in his practice and then another nutritionist who works with his practice but isn't a part of mensah medical. I called in to Mensah medical and was quoted something significantly higher than those rates. Literally over ten times that.

I am working with Sami Gilbert. I found a blog she wrote about MCAS and Copper/zinc issues and felt it sounded like me. She is affiliated with Menseh (isn't in the location, but works along side them) and works with him. She is his go to nutritionist but don't be fooled, she is going to become a Functional Medicine doc. I have only spoken with her twice but she knows a lot. She, I feel, has me pegged....but again, we shall see.

Since she is trained by Albert Menseh and is really into the Walsh institute, I would say she is really right on. I have watched Podcasts where he refers to her.

Again, I am just at the beginning of working with her so who knows, but she emails me, gets back to me and really seems to care, which is nice along with just understanding (for me)...hormones and how they can also make you sick and nuts.

 

[Firefly_]

Firefly have you received any real benefit from this doctor? What protocols do they use? Just wondering. $515 is expensive, but still, the quote I got from Mensah Medical is still more expensive than that by close to double.

Just had my 1 month follow-up today. He found a ton of stuff my neither my GP nor the useless "specialists" my GP sent me to found. Drew more blood and ran even more tests as a follow-up to some of the previous test results, I was there for about 5 1/2 hrs today. Left with 5 prescriptions, some answers, and some hope. Nothing in this disease is guaranteed cure wise, but at least we have a clue now what's going on.

Scripts are neomycin, rifaximin, desmopressin, ummm something else that starts with a d for my non existent cortisol production aaand uh one of the anti-virals. Valcyte maybe? Can't remember and I'm not getting out of this giant ass hotel tub to look lol.

I do have to say that on my initial visit before any test results he had me start iberogast for my digestive issues and constipation (that stuff is brilliant!) and had me raise my LDN that I had self started on from 3.5 mg to 4.5 mg.

 

[Bdeep86]

@Misfit Toy how is the protocol going with Samantha?

 

[caledonia]

Dr. Mensah does the Walsh protocol which was developed for various kinds of mental illnesses. I could see where it could also be helpful for ME patients as in some cases, it works on the methylation cycle.

The cost I have heard is $400 for the testing (not that bad in the scheme of things), then, of course, there would be office visits, supplements and so forth.

If somebody was quoted $1000, I don't think that's out of line with what other naturopathic type doctors would charge for similar services.

 

[sillysocks84]

I'm finding that no one is cheap who really treats this.

Which is a rip-off because you can't even treat this or manage it like you can diabetes.

 

[Misfit Toy]

@Bdeep86 -I just want to say Sami is cheap compared to Mensah. She's $75 for a half hour.

I felt way better mentally from the higher dose of zinc, p5p and B6 but had to go down on them as I could not sleep a wink! So, I'm on zinc right now and EPO.

I also had bad neuropathy but I have Sjogrens which does not make it easy.

A slow process. I don't believe this to be a cure but I need guidance, more than I would get from PR.

@Firefly_ Are you seeing Mensah?

 

[SOC]

Which is a rip-off because you can't even treat this or manage it like you can diabetes.

Why do you say that? My daughter and are both decently managed and get a lot of treatments through ME/CFS specialists, none of whom were particularly expensive relative to local GPs or other specialists (cardiologists, endocrinologists, etc). In fact, they were cheaper than most local specialists.

My daughter went from not finishing her semester in college to graduating with an MS in Mechanical Engineering, working full-time, and generally living a normal life -- with a lot of treatment. She is not cured, but very well managed.

I went from bedbound, unable to read, and generally miserable to working part-time, caring for all my own ADLs including shopping without wheelchair or other mobility aids, and exercising VERY gently and carefully. I'm far from cured, but consider my condition to be reasonably well-managed.

I wouldn't say a cure is possible at the moment, but it is possible to manage ME/CFS to improve QOL (quality of life).

 

[kkrathi]

@Bdeep86 -I just want to say Sami is cheap compared to Mensah. She's $75 for a half hour.

I felt way better mentally from the higher dose of zinc, p5p and B6 but had to go down on them as I could not sleep a wink! So, I'm on zinc right now and EPO.

I also had bad neuropathy but I have Sjogrens which does not make it easy.

A slow process. I don't believe this to be a cure but I need guidance, more than I would get from PR.

@Firefly_ Are you seeing Mensah?

Hi @Misfit Toy
I am wondering if you have any update on the mensah/walsh protocol you were following. I had a phone consult with Dr Mensah couple of days ago as I am undermethylated. He has recommended I start with the protocol but he had very limited time. Wanted to get an opinion and find out if you experienced positive results. Could you please respond? It would be helpful if you do.

K

 

[Bdeep86]

Sami I would not recommend, this protocol in general is doubtful for treating CFS

 

[Misfit Toy]

Sami I would not recommend, this protocol in general is doubtful for treating CFS

Do you have any dealings with Sami, or is this a generalized statement? I didn't think it would treat CFS, but CFS leads to so many other problems in the body.

 

[Misfit Toy]

I am wondering if you have any update on the mensah/walsh protocol you were following. I had a phone consult with Dr Mensah couple of days ago as I am undermethylated.

I did not deal with Dr. Mensah as I found his prices to be insane. I deal with Sami Gilbert who is so much cheaper and studied under Mensah. I was not able to tolerate Zinc, P5P and B6. But...I had a thyroid issue going on which wasn't helping at all. I am too sick to restart the protocol right now as I just had a thyroidectomy and I need to get on the proper dosage of thyroid meds, but I talked to Sami last week.

I really like Sami as she didn't want to start me on anything right now, didn't want to sell me anything until my thyroidless body is more stable. She is a nice person.

I think Dr. Mensah, from what I have read, puts people on way too much stuff all at once, but I am not sure.

I can say I do not feel that pyroluria is "all of my problem" at all. I also know that methylation issues are just that, an issue. Do I think that's everything with this illness? NO.

I think there is much more to this than methylation.