Hi everyone I have been ill for last 10 years with an original diagnosis of ME, I had been tested for loads of other things over the years and main symptoms where ENT infections and neurological. I was already under a London neurology hospital for epilepsy and they couldnt tell me what was causing symptoms and I got a referal last yeaar to see a neuropsychiatrist. Whilst waiting for this appointment I had an ear infection flare up and after a course of antibiotics I went back to my GP who for the first time took an ear swab and when results came back I had an antibiotic resistant infection pseudomonas aeruginosa and was given a course of ciprofloxacin for 7 days. After taking these I could notice big difference in neurological symptoms but was refused any more from gp because of drug resistance yet they handed other ones out like smarties prior to this.
I then took a visit to my local A&E who gave me a ten day course to get on top of it again I have noticed big improvements but still had some nerve inflammation. I went and saw the neuropsychiatrist who was shocked when I said I had a drug resistant infection but she still wants to see me again in a few months. I then had another flare up of ears and got some ear drops off my new GP after having to change as old GP refused to treat anymore. After about three months I got a 3rd course of cipro from new gp as I had brain stem inflammation felt like it was on fire and this went with the ciprofloxacin. I went to see the ENT about 4 weeks after taking this dose and she refused to believe the two were related and put the neurological symptoms as something else but told me to get myself tested for diabetes as it in my family and I know my immune system not compromised because of this. I also had sinus and throat infections throughout.
I have emailed my neurologist and see him in 4 weeks but am wondering if some people could have an antibiotic resistant infection without realizing.
I am trying to get another dose of ciprofloxacin as I still have some nerve inflammation in arms and legs. I have had no life last ten years when all I needed was an antibiotic. Has anyone else here had anything similar?
I then took a visit to my local A&E who gave me a ten day course to get on top of it again I have noticed big improvements but still had some nerve inflammation. I went and saw the neuropsychiatrist who was shocked when I said I had a drug resistant infection but she still wants to see me again in a few months. I then had another flare up of ears and got some ear drops off my new GP after having to change as old GP refused to treat anymore. After about three months I got a 3rd course of cipro from new gp as I had brain stem inflammation felt like it was on fire and this went with the ciprofloxacin. I went to see the ENT about 4 weeks after taking this dose and she refused to believe the two were related and put the neurological symptoms as something else but told me to get myself tested for diabetes as it in my family and I know my immune system not compromised because of this. I also had sinus and throat infections throughout.
I have emailed my neurologist and see him in 4 weeks but am wondering if some people could have an antibiotic resistant infection without realizing.
I am trying to get another dose of ciprofloxacin as I still have some nerve inflammation in arms and legs. I have had no life last ten years when all I needed was an antibiotic. Has anyone else here had anything similar?