This thread isn’t to discuss the study – there’s a thread elsewhere for that – but is for posting links to any media coverage. I’ll update this first post with any links posted below.
If there are any media stories, it’s a great opportunity for us to hijack the media – especially by posting comments on online stories, or writing to local/national newspapers – to get out the points that we want to make.
For example, we should be telling people that our biomedical research charities exist, telling them that we’ve donated and that so should they. Invest in ME’s UK rituximab trial is a good one to mention, for obvious reasons, but so are the others. We need to grow our donor base.
And we need to educate the public – let them know that this is a serious, organic disease. We can cite this study and the big, recent reports from the IOM and P2P.
I’ve written an article explaining how to do this. We just need one millionaire to read your comment, and...
Here are the news stories:
Metro (France) - commentable!
Spektrum (Germany) - commentable!
Dagens Medisin (Norway) - commentable!
Helsingin Sanomat (Finland) - commentable!
FranceTVInfo (France, public TV) - commentable!
Sante magazine (France) - not commentable
New Scientist (UK)- not commentable
Mylder (Norway) - not commentable
IFLScience - not commentable
If there are any media stories, it’s a great opportunity for us to hijack the media – especially by posting comments on online stories, or writing to local/national newspapers – to get out the points that we want to make.
For example, we should be telling people that our biomedical research charities exist, telling them that we’ve donated and that so should they. Invest in ME’s UK rituximab trial is a good one to mention, for obvious reasons, but so are the others. We need to grow our donor base.
And we need to educate the public – let them know that this is a serious, organic disease. We can cite this study and the big, recent reports from the IOM and P2P.
I’ve written an article explaining how to do this. We just need one millionaire to read your comment, and...
Here are the news stories:
Metro (France) - commentable!
Spektrum (Germany) - commentable!
Dagens Medisin (Norway) - commentable!
Helsingin Sanomat (Finland) - commentable!
FranceTVInfo (France, public TV) - commentable!
Sante magazine (France) - not commentable
New Scientist (UK)- not commentable
Mylder (Norway) - not commentable
IFLScience - not commentable
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