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After 31 years of CFS/ME...diagnosed with NAFLD

Zensational

Senior Member
Messages
139
Location
Orlando, Florida
Hi Everyone, :)
I was just diagnosed with severe Non-Alcoholic Fatty Liver Disease last month. My doctor found it as a result of an abdominal ultrasound. I was shocked to learn that I am 14 times more likely to have a heart attack with this disease. She said that my cholesterol was high (237) but normally the cholesterol level with NAFLD is much higher with the disease as severe as mine. She referred me to a liver specialist and my appointment is next week. I am wondering what to expect. I believe the cause of my disease to be a 30 year bout with CFS which is Epstein Barr Virus. The virus can attack the liver functioning and apparently that is what has happened.
There is a lot we can do nutritionally to help ourselves as well as exercise and weight loss. The weight loss is slow going with me because of the fatigue but I've lost several pounds in 2 weeks. The liver is responsible for metabolism so when it is not functioning well it seems that everything slows down.
In the meantime, I am taking a very proactive approach. Here is what I am doing.
Paleo Diet- off all sugar, grains, high carbs
Lots of purified water and lemon first thing in AM and throughout the day.
Vitamin E 800mg daily
Phosphydtyal Choline 900mg
daily (there is a strong correlation to fatty liver and choline deficiency) I am using Life Extension Hepatopro 900 Mg Capsules
N-Acetyl Cysteine 1000mg
Milk Thistle 4:1 Extract 1000 mg (Silymarin)
6 CAPS – OLIVE LEAF POWDER (for virus)
4 CAPS – MUSHROOM COMPLEX
2 CAPS – CORDYCEPS
1 CAP – SELENIUM
5 DROPS LOMATIUM W. 2 GRAMS VIT C..this herb is very powerful antiviral, antibacterial and am taking to combat the EBV
DIGESTIVE BITTER WITH MEALS help decongest the liver.
PEPPERMINT OIL WITH MEALS helps with digestion and IBS
Lacto-fermented Vegetables
EVENING
CITRACEL WITH 1 TBS POTATO STARCH
AND- please read about resistant starch before you dismiss it. It is crucial in feeding the good gut bacteria. I am using Bob's Red Mill Unmodified Potato Starch. It has to be the raw potato starch. Also plantain starch will work as well.[/I]
1-2 TBLS APPLE CIDER VINEGAR
1 CAP - PRIMAL FORCE PROBIOTIC
Alot of people have had success with the Y-Dan exercises.
My husband has an embedded kidney stone so we are starting to drink chanca piedra tea for kidney stones as it helps clear both the kidneys and the liver.
If you are eating the SAD, standard American diet and drinking anything with high fructose corn syrup, like we all have, then please get informed about the hazards of this.
This is a somewhat silent disease and the food industry is not on our side. Personal opinion there.
I sincerely hope this helps someone. If you have anything else you have found that is helping please let me know. I am 69 years old and do not take any medications. My doctors are surprised but I deal health issues naturopatically.
Being diagnosed was actually a good wake-up call for me because I intuitively knew that I had GI problems, just didn't know what they were.
 
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anciendaze

Senior Member
Messages
1,841
TID = three times daily.
TID is a relic of the time when every doctor learned Latin: "ter in die". "three in a day"

In English this could be confused with "two in a day", but in Latin that is "bis in die", B.I.D.
Another possible prescription is Q.I.D. for "quater in die" or "four in a day".

There is even a terribly confusing notation Q.D. for "quaque die" for "once a day", though that has mercifully fallen out of use.
 

Zensational

Senior Member
Messages
139
Location
Orlando, Florida
You could try regular PC, not PPC. I'm not sure that PPC is more effective.
Maybe I'll take the PPC once a day and the PC twice a day.
Do you think I should have a needle biopsy if the doctor recommends it?
 

adreno

PR activist
Messages
4,841
Nonalcoholic fatty liver disease (NAFLD) is associated with altered hepatic lipid composition. Animal studies suggest that the hepatic ratio of phosphatidylcholine (PC) to phosphatidylethanolamine (PE) contributes to steatogenesis and inflammation. This ratio may be influenced by dysregulation of the PE N-methyltransferase (PEMT) pathway or by a low-choline diet.
http://www.nrcresearchpress.com/doi/abs/10.1139/apnm-2012-0261

From this I think it's safe to assume that PPC is more effective. Regular PC caps contains some PE as well, but the PC content has been boosted, so it may still work. Lecithin should probably be avoided.
 
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Vasha

Senior Member
Messages
119
Hi @Zensational - so sorry to hear that! :hug: Fatty liver showed up on one of the scans when I first got sick (I was losing weight like crazy, so the doctor was concerned about cancer) even though I've never been overweight, a big drinker, etc. I think we are more at risk for it because, as you noted, there is a strain on the liver. I suspect metabolic issues also contribute.

I don't have much to add to your very impressive regimen, but my terrific functional medicine doctor got me drinking lemon juice in the morning, 1/2 hour to an hour before eating, as a gentle liver detox to help with the strain. You can dilute it as much as you need, and work up to the juice of a whole lemon. Some people can just drink it straight after working up.

Vasha
 

Vasha

Senior Member
Messages
119
TID is a relic of the time when every doctor learned Latin: "ter in die". "three in a day"
THANK YOU @anciendaze - this is one of those things that is quietly puzzling in the back of the mind that I have never managed to look up and figure out. It is highly satisfying to know the answer. :nerd:

Vasha
 

Little Bluestem

All Good Things Must Come to an End
Messages
4,930
@Zensational , my notes say that manganese and zinc deficiencies cause a choline deficiency. Have your manganese and zinc been tested?

Does someone (doctor, naturopath) know that you are taking the milk thistle. It can be bad in some situations.

@anciendaze, or anyone else, what does PNR mean in Latin?
 

Little Bluestem

All Good Things Must Come to an End
Messages
4,930
Yes, I mean PRN. Sheesh, I got the right letters. Certainly you don't expect me to get them in the right order! I think maybe it is time for me to go to bed. :sleep:
 

anciendaze

Senior Member
Messages
1,841
...
@anciendaze, or anyone else, what does PNR mean in Latin?
PRN stands for "Pro Re Nata" = "as the thing is born" meaning "as needed" or "as circumstances require". This is not the same as whenever you feel like it, that would be "ad libitum".

Misspelling and omissions are particularly dangerous in Latin, where natis means buttocks, and P.R. is the standard medical abbreviation for "per rectum".

This brings to mind the Swedish joke about a medical orderly named "Per Anus", which sounds very much like a real Swedish name. Medical humor tends toward certain parts of the body in any language.