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Most threads about POTS, NMH, and other forms of dysautonomia are in this forum:So maybe there is already post like this? But I'm wondering what are all the different treatment options for POTS/dysautonomia?
Yohimbe can actually lower blood pressure further in some people...and raise it in others! So a little careful experimentation might be in order to see if we are as lucky as Valentijn.Yohimbe for the same reason
I wouldn't say that it lowers or raises mine. It just raises my pulse pressure. My systolic stays about the same or rises slightly, staying at a normal level, and my diastolic drop a bit, also to a normal level.Yohimbe can actually lower blood pressure further in some people...and raise it in others! So a little careful experimentation might be in order to see if we are as lucky as Valentijn.
http://www.drugs.com/npp/yohimbe.html
Nope.@Valentijn did you ever try midodrine or provigil ?
Florinef?Nope.
My daughter and I both take Florinef (fludrocortisone) and definitely benefit from it.Florinef?
I ask about these things because they seem to be "first line of defence against pots" but I am nervous to try them
I'm taking midodrine, florinef, prescription potassium (time release), salt tablets, and plenty of water (3 liters daily). I sometimes mix up a liter of electrolyte mixture (it has about the same sodium and potassium as what is in a liter of plain, unflavored pedialyte) to get extra sodium and potassium.Florinef?
I ask about these things because they seem to be "first line of defence against pots" but I am nervous to try them
Florinef?
I ask about these things because they seem to be "first line of defence against pots" but I am nervous to try them
Hi @alice111
Just a cautionary note: I tried Florinef, and immediately afterwards felt like I had drunk 20 cups of coffee--and I felt that way for about a week. I felt terribly sick as well. I only took one dose, and it was one of the most horrible weeks ever for me. -- If you do ever try it, I would recommend starting out with a VERY small dose, and see how you react.
Yes, I can see why more fluids wouldn't make a difference if you can't keep the fluids in your system with Florinef or desmopressin. It just goes straight through, so there's not much point. They didn't do me much good without Florinef, either. Neither Florinef, nor verapamil alone was anywhere near as good for me as the two together.Increasing liquids and electrolytes doesn't make a blind bit of difference to me. It would be silly to take these meds without doing that.
I wish prof newton would precribe florinef but until low blood volume is accepted, they won't do this. She's currently trying to get funding to research low blood volume. I don't know if she got it or not.
hi all,
So maybe there is already post like this? But I'm wondering what are all the different treatment options for POTS/dysautonomia?
Has anyone had success or improvements in this area?
Supplements, protocols or RX drugs?
Thanks!