PhoenixBurger
Senior Member
- Messages
- 202
My symptom set has always been indicative of some sort of immune disorder. I've always known that, even though doctors in their infinite wisdom rejected it, because my ANA was always negative.
I was just pouring through some test results to see when my last ANA was, because I feel like I've developed the tell-tale lupus mask, sun sensitivity, and some other symptoms which are remarkably similar to reynauds / scleroderma.
I found a test from an oncologist from 2 years ago which was a more in-depth ANA test. Both he and the highly esteemed Dr. Irma Rey at Nova Southeastern University saw this result and said absolutely nothing to me about it at the time. I am literally just now seeing it 2 years later because I keep copies of all my results.
The standard test for Antinuclear Antibodies was negative, but on page 2 you can clearly see it says:
"Although the specimen was negative for anti-nuclear antibodies (ANA), the presence of cytoplasmic flourescence was noted on the HEp-2 slide. Other reactivities such as Anti-mitochondrial or Anti-smooth muscle antibodies may be responsible for this flourescence"
Given my symptoms, it astounds me that two highly esteemed specialists failed to mention this to me as something worth checking out. I am doing my best not to go on a frantic Google-fest right now for the above result, but I did land on a couple sites (including a Lupus site) where they explained that this is indicative of autoimmunity, though its nonspecific as to what type. Just would like to do a shoutout to Dr Rey and the oncologist for not pointing this out to me, and allowing me to go another 2 years miserable and without answers.
Anyone here have any insight on this result? I am prepared to find out I have lupus or scleroderma at this point, so its not going to be the end of my world.
-B-
I was just pouring through some test results to see when my last ANA was, because I feel like I've developed the tell-tale lupus mask, sun sensitivity, and some other symptoms which are remarkably similar to reynauds / scleroderma.
I found a test from an oncologist from 2 years ago which was a more in-depth ANA test. Both he and the highly esteemed Dr. Irma Rey at Nova Southeastern University saw this result and said absolutely nothing to me about it at the time. I am literally just now seeing it 2 years later because I keep copies of all my results.
The standard test for Antinuclear Antibodies was negative, but on page 2 you can clearly see it says:
"Although the specimen was negative for anti-nuclear antibodies (ANA), the presence of cytoplasmic flourescence was noted on the HEp-2 slide. Other reactivities such as Anti-mitochondrial or Anti-smooth muscle antibodies may be responsible for this flourescence"
Given my symptoms, it astounds me that two highly esteemed specialists failed to mention this to me as something worth checking out. I am doing my best not to go on a frantic Google-fest right now for the above result, but I did land on a couple sites (including a Lupus site) where they explained that this is indicative of autoimmunity, though its nonspecific as to what type. Just would like to do a shoutout to Dr Rey and the oncologist for not pointing this out to me, and allowing me to go another 2 years miserable and without answers.
Anyone here have any insight on this result? I am prepared to find out I have lupus or scleroderma at this point, so its not going to be the end of my world.
-B-