I've been having a serious doctor access problem and it's been affecting my health. It's made me research what percentage of ME/CFS patients are getting/able to get appropriate treatment from a doctor and what percentage aren't. But It's been hard to find such data. I'm curious to see the poll answers and input, here. I'm also trying to get a sense of how many people can and can't get local care and how those who have to get out-of-state care are limited by that factor (you will see relevant distance answers at the bottom of the poll).
I'm also trying to create an advocacy letter on this topic.
Appropriate treatments are what our too few ME/CFS experts are dispensing. Examples are B-12 shots or sprays, antivirals, sleep aids, advice on pacing and resting, tests on our immune system, pain medication, nutritional supplements and herbs, etc.. Inappropriate care would be psychological treatments like CBT, GET and strenuous PT, which exacerbate your symptoms, etc..
Regular treatments would be at least a few times a year (in person, phone, skype) and enough to manage/attempt to manage your ME/CFS.
Please answer if you are an ME/CFS patient or you are answering for an ME/CFS patient who is unable to respond. You may choose multiple answers. You may also change your answers. Let me know if I've missed possible answers. Please expand on your answers, below. I'm interested in hearing about other patients' doctor access/treatment experiences.
If your answer varies, depending on how you're feeling, answer based on the last 6 months or less if need be.
I'm also trying to create an advocacy letter on this topic.
Appropriate treatments are what our too few ME/CFS experts are dispensing. Examples are B-12 shots or sprays, antivirals, sleep aids, advice on pacing and resting, tests on our immune system, pain medication, nutritional supplements and herbs, etc.. Inappropriate care would be psychological treatments like CBT, GET and strenuous PT, which exacerbate your symptoms, etc..
Regular treatments would be at least a few times a year (in person, phone, skype) and enough to manage/attempt to manage your ME/CFS.
Please answer if you are an ME/CFS patient or you are answering for an ME/CFS patient who is unable to respond. You may choose multiple answers. You may also change your answers. Let me know if I've missed possible answers. Please expand on your answers, below. I'm interested in hearing about other patients' doctor access/treatment experiences.
If your answer varies, depending on how you're feeling, answer based on the last 6 months or less if need be.
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