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Thanks for the clarification, Mari66.Thanks all
I am a nurse who cared for many patients with ME, mainly severe cases. So when this NICE/ CCC diagnosis was given to my daughter and she was rapidly declining I was devastated. The more I think of the diagnosis based purely on symptoms, which are obviously different for everyone and are similar to many other diseases the more Dr Amir's findings make sense. His diagnosis is based on physical examinations and visual signs of altered anatomy and physiology which is something that can be dealt with, something I have seen in discussions with his patients in the waiting room, the stories are amazing.
As to the cause. No injuries at all, no previous ill health at all, My daughter had many teeth removed and braces put in place as a teenager for cosmetic reasons and as soon as these were removed her teeth became very misshapen. She may have had underlining lack of jaw development also. When Dr Amir first saw Hannah and showed us in detail her jaw abnormalities I was astounded and indeed checked all members of the family and found Hannah's was the only one who was grossly abnormal
Best wishes to you all
It's still difficult to tell whether Dr Amir's treatment will work for all, or even a small minority of PWME, as most of us do not have jaw abnormalities, much less ones as clear as Hannah's appear (in hindsight) to be.
That said, if it can be a help to even some people with ME or ME-like symptoms, it bears investigation, especially by patients with jaw or other structural abnormalities. No one should have to live with ME-like symptoms if they can be cured with a treatment as relatively simple as Dr Amir's.
For those of us with documented pathogen involvement and clear (by testing) immune abnormalities, I doubt Dr Amir's adjustment of structural abnormalities is likely to be a cure, or even much of a help.
I'd advise Dr Amir and his supporters not to oversell his treatment. It could be very beneficial to a subset of patients diagnosed with "CFS/ME" by broad guidelines, but claiming it as THE cure for all ME patients only makes it look like another magical cure. That diminishes his credibility and could discourage those people who might benefit from his treatment from seeing him.