Butydoc
Senior Member
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When I woke this am, I surfed the internet and decided to listen to Vincent Racaniello most recent installment of TWIV. Vincent Racaniello is a virology professor at Columbia University who has previously spoke about XRMV. During this episode, the group discussed the IOM report. It was interesting how the group perceived the name change and their confusion about the disease. They commented on the group of patients who were dissatisfied with the name change. I think it would be appropriate for those debating this issue to hear what scientist think about this controversy. Dr. Racaniello made a very interesting comment. He confessed to the group that his son has a debilitating illness which is poorly understood which prompted his wife to send him an article about the IOM report. She believes her son has CFS/ME/SEID. Here is the link to this episodeTWiV 329.
I went to see my internist later today to have some blood work. When I saw him, he was very excited to speak to me about a book he just read. The title was "Plague". I haven't read this book yet. I was impressed how much he had learned about CFS/ME/SEID. Apparently the book was very sympathetic to Judy Mikovits.
What was interesting to me was that two separate events in my life that were unrelated except for the fact that they were talking about CFS/ME/SEID. Hopefully this is not just a fluke but possibly a greater awareness concerning this disease. I can't wait until I can use a single name for this disease. It sure would make it easier to discuss and write about it with less work and confusion.
Best,
Gary
I went to see my internist later today to have some blood work. When I saw him, he was very excited to speak to me about a book he just read. The title was "Plague". I haven't read this book yet. I was impressed how much he had learned about CFS/ME/SEID. Apparently the book was very sympathetic to Judy Mikovits.
What was interesting to me was that two separate events in my life that were unrelated except for the fact that they were talking about CFS/ME/SEID. Hopefully this is not just a fluke but possibly a greater awareness concerning this disease. I can't wait until I can use a single name for this disease. It sure would make it easier to discuss and write about it with less work and confusion.
Best,
Gary