Snowdrop
Rebel without a biscuit
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I don't often go to the MEAO website as I have discovered that the information there is fairly static with nothing much new.
Since following the IOM report threads I found myself wondering what might be happening in my own home area. And also what I might do about ME advocacy here (the short answer being--not much in the short term. In my current situ it will take me some time to get a grip on organising any action on my part).
When I went to the website I found a new document. I'd like to share it here if you have not yet found it.
With the mea culpa that I have not yet read it through, it would seem to be very long.
Here is the link:
http://www.meao.ca/events-dec5a.html
Edit to add: About the document:
Recognition, Inclusion and Equity – The Time is Now: Perspectives of Ontarians Living with ES/MCS, ME/CFS and FM
On December 5th, 2013 at MEAO's Community Engagement Day, MEAO released its major new report,'Recognition, Inclusion and Equity - The Time is Now: Perspectives of Ontarians Living with ES/MCS, ME/CFS and FM.' Funded by grants from the Ontario Trillium Foundation and Ontario Ministry of Health and Long Term Care, this report has been submitted to the Ministry as a major supporting document for a business case proposal to establish the 'Ontario Centre of Excellence in Environmental Health' - a network of new clinical, support, research, policy and education and outreach services for our community. We are pleased to make available both the full report and the shorter 'Highlights'.
Since following the IOM report threads I found myself wondering what might be happening in my own home area. And also what I might do about ME advocacy here (the short answer being--not much in the short term. In my current situ it will take me some time to get a grip on organising any action on my part).
When I went to the website I found a new document. I'd like to share it here if you have not yet found it.
With the mea culpa that I have not yet read it through, it would seem to be very long.
Here is the link:
http://www.meao.ca/events-dec5a.html
Edit to add: About the document:
Recognition, Inclusion and Equity – The Time is Now: Perspectives of Ontarians Living with ES/MCS, ME/CFS and FM
On December 5th, 2013 at MEAO's Community Engagement Day, MEAO released its major new report,'Recognition, Inclusion and Equity - The Time is Now: Perspectives of Ontarians Living with ES/MCS, ME/CFS and FM.' Funded by grants from the Ontario Trillium Foundation and Ontario Ministry of Health and Long Term Care, this report has been submitted to the Ministry as a major supporting document for a business case proposal to establish the 'Ontario Centre of Excellence in Environmental Health' - a network of new clinical, support, research, policy and education and outreach services for our community. We are pleased to make available both the full report and the shorter 'Highlights'.
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