Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Robin, you are a star for doing these updates, thank you!
Two potential problems getting in; you need to update Java or if you have Vista you need to go to your Control Panel Click on User Accounts and Turn Your User Account Control Off
The person at the company said this applies to all people with Vista- which makes it incredible to me that they don't mention this up front.
I am very upset that they posted everyone's name and if you hovered, you could see email addresses as well. I sent a message to Kim M. and she said they would work on that for the next one, but they couldn't do anything about today's broadcast. Not cool!
Kim,
I had the same concern. I'm glad you said something (and you are always welcome to look me up when you're in town or e-mail whenever you want).
As for my question about the directed donation, I just sent the CAA a copy of the question as I had worded it in post #49.
Did anyone get a screengrab of the EBV graph? That one was fascinating for me since like many of you my CFS was triggered by EBV.
I think the graphs might have been mislabelled though because the "early recoverers" were still fatigued at the end of the interval where as the "late recoverers" were all at zero. Doesn't make sense otherwise.
Missed the first part (its early in the morning here).
It made me feel like an adult ( not like the usually-patronising, always useless doctor patient interaction). I know I love CONTROL (sooo un-Buddhist) and thats a big thing you lose with ME. Kept in the dark and not even fed bulls**t.