Great questions. One thing that might be helpful to have on hand is the twitter handles and emails of health and medical reporters. I tried to find David Tuller's email or twitter yesterday to post in the Hornig study press thread and couldn't. He wrote 2 of the 3 recent NYT articles on CFS/ME, He is a freelance writer who has a friend with this illness. He has written about CFS/ME for years and has incorporated reader/patient feedback from previous articles into his articles in subsequent articles. In one interview, he talked about how hard it has been to get editors to accept pitches for articles about CFS/ME. I eventually found one email address for him but it was associated with his day job at a university. Didn't know if we should contact him there.
If we had such a list and also one of editors, we could give instant evidence to editors that they should approve CFS/ME stories more often. .If we had such a list, we might have to post the list in such a way that decreases spam for these reporters. We want this effort to be positive, not negative for them. For example writing "reporterATreportingDOTcom" instead of "
reporter@reporting.com." Other people could probably better address the spam, crawler, bot issues.