Still not sure either way about the 'SEID' thing - pros and cons there - but so much to like otherwise:
Et cetera.
I watched the video (scroll down a bit) of the launch and was very impressed by the attitude of the panel. These people are on our side. They're encouraging us to use it to 'act up'. And they worked for a year on this FOR FREE!
Who do I email to thank the panel?
- ding, dong, 'CFS' is dead!
- clear statement that this is an organic disease, not somatization
- clear diagnostic criteria with PEM non-negotiable
- criteria are simple enough for any doctor to diagnose - no more waiting ten years to stumble across a specialist
- not too many symptoms so excludes too many misdiagnosed psychiatric patients (as Lenny Jason wanted)
- criteria aren't criteria of exclusion, which is a huge thing - we're not just what's left over
- CBT/GET given a kicking
- heavy criticism of how patients have been treated and the poor funding
- heavy-duty federal report
Et cetera.
I watched the video (scroll down a bit) of the launch and was very impressed by the attitude of the panel. These people are on our side. They're encouraging us to use it to 'act up'. And they worked for a year on this FOR FREE!
Who do I email to thank the panel?
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