Tired of being sick
Senior Member
- Messages
- 565
- Location
- Western PA USA
Should Members with a post count below 100 be able to post CFS/ME "cure" claims?
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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The relapse rate is high. I don't think "cure" is at all appropriate at this point.I just don't like people using the word cure. What is the definition of cure for us? Cancer patients are not considered cured for 5 years. When someone has felt good for a few months, how is their status defined? Cured, remission, good patch? Is there a specific criteria for us?
The relapse rate is high. I don't think "cure" is at all appropriate at this point.
If somebody has a credible story of significant improvement or even a cure, then I want to hear about it.