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The ME Association has a long history of taking funds raised by people who say they have ME and do extreme physical stamina/endurance challenges whilst claiming to be 'raising awareness' about how seriously debilitating ME is. Marathons, the 'Toughmudder' 12 mile obstacle course, demanding tough hill walking routes .... physical challenges that are beyond many healthy people.
Each time, ME patients, including MEA charity members, tell the MEA that they are horrified at how public perception of ME is further damaged by publicity for the displays of physical exertion and endurance entailed in doing these extreme challenges for fundraising. Publicity is sought for such exploits, and the people doing them say things such as Yes they have ME but they don't let it hold them back....
The MEA loses members because of it, potential members are put off, and endless patients are distressed by the possibility of their friends and relations, doctors, DWP assessors, reading about ME sufferers doing such demanding physical challenges, leading to perceptions that ME sufferers just need to make more effort etc.
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