So which one are we voting for, please could you clarify Dr Shepherd?
I most certainly do not want my myalgic encephalomyelitis renamed 'myalgic encephalopathy' thank you very much.
As Wildcat pointed out, myalgic encephalomyelitis has a WHO ICD Classification and myalgic encephalopathy does not.
I knew you wouldn't like this latest MEA poll
I have already explained that for the purpose of this poll ME = myalgic encephalomyelitis or (if you prefer as I do) myalgic encephalopathy
We are not making an issue in this poll over encephalopathy vs encephalomyelitis
We are just trying to gather some patient evidence to present to the medical establishment when we say that "patients do not like the term CFS and far prefer ME" and they turn back on us and say "what evidence do you have to say that patients do not like the term CFS"
The names of all kinds of diseases change over time to take account of scientific evidence (or lack of scientific evidence in the case of M encephalomyelitis) and there is nothing to stop doctors (and I am not alone here in advocating encephalopathy) putting forward an alternative name for a disease
As you probably know, my own ME started with a chickenpox encephalitis.
However, I do not believe that my on-going illness (my symptoms do not meet criteria for CFS) involves an M encephalomyelitis whereas an M encephalopathy is consistent with symptoms, signs and invention findings.