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Hello everyone,
I'm new to these forums so let me introduce myself. I'm 21, had CFS/ME for 19 months now. I have had a progressive decline in my condition from being able to work after my initial crash (gp said it was just pvf and I would do no harm pushing myself) to now being primarily housebound. I live with my parents who do not believe I'm ill which has been very frustrating and upsetting.
My GP has been next to useless unfortunately and I have tried only one treatment which was Gupta's amygdala retraining (no improvement). There are no specialists in my county in the UK and no funding for me to go to the Yorkshire fatigue clinic in my nearest county. I've reached the point where I'm giving up on the NHS as I've naively up to now thought the condition would go on its own but that has been far from the reality.
I don't really know where to start in terms of treatment, I don't know who in the UK specialises in this illness or whether it's a case of becoming ones own doctor and guessing at things to try. This illness is awful and I sympathise with everyone else going through it. I've lost my girlfriend, job and independence as well as many other things but I'm sure there's light at the end of the tunnel for all of us (maybe I'm being naive again).
Any advice would be greatly appreciated. I'd love to meet someone my own age who has this condition. I know many people much younger than I develop it but just to speak to someone my own age would be great to know I wasn't the only one in my 20's who's so sick.
I've never even met or spoken to anyone else before with this condition so I'm completely in the dark.
Sorry if this thread doesn't make much sense or is in the wrong place. Not feeling too good tonight in terms of brain function. Pushed myself to exhaustion today
I'm new to these forums so let me introduce myself. I'm 21, had CFS/ME for 19 months now. I have had a progressive decline in my condition from being able to work after my initial crash (gp said it was just pvf and I would do no harm pushing myself) to now being primarily housebound. I live with my parents who do not believe I'm ill which has been very frustrating and upsetting.
My GP has been next to useless unfortunately and I have tried only one treatment which was Gupta's amygdala retraining (no improvement). There are no specialists in my county in the UK and no funding for me to go to the Yorkshire fatigue clinic in my nearest county. I've reached the point where I'm giving up on the NHS as I've naively up to now thought the condition would go on its own but that has been far from the reality.
I don't really know where to start in terms of treatment, I don't know who in the UK specialises in this illness or whether it's a case of becoming ones own doctor and guessing at things to try. This illness is awful and I sympathise with everyone else going through it. I've lost my girlfriend, job and independence as well as many other things but I'm sure there's light at the end of the tunnel for all of us (maybe I'm being naive again).
Any advice would be greatly appreciated. I'd love to meet someone my own age who has this condition. I know many people much younger than I develop it but just to speak to someone my own age would be great to know I wasn't the only one in my 20's who's so sick.
I've never even met or spoken to anyone else before with this condition so I'm completely in the dark.
Sorry if this thread doesn't make much sense or is in the wrong place. Not feeling too good tonight in terms of brain function. Pushed myself to exhaustion today