• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Congress Reps

WillowJ

คภภเє ɠรค๓թєl
Messages
4,940
Location
WA, USA
A long time ago someone here mentioned a congress rep who is generally supportive of patient groups. Anyone know who that is.

could it be Rep. Zoe Lofgren? she is doing some cool stuff, though I don't know about patient orgs in particular. She is CA, but I don't know what area
 

catly

Senior Member
Messages
284
Location
outside of NYC
Here's a list of the committee members from the House Committee on 21st Century Cures.

Many of the reps from this committee are seeking input from patients across the country in an effort to help direct and fund future health related initiatives.

Republicans
Chairman: Joe Pitts (PA)
Vice Chairman: Michael C. Burgess, M.D. (TX)
Ed Whitfield (KY)
John Shimkus (IL)
Mike Rogers (MI)
Tim Murphy (PA)
Marsha Blackburn (TN)
Phil Gingrey (GA)
Cathy McMorris Rodgers (WA)
Leonard Lance (NJ)
Bill Cassidy (LA)
Brett Guthrie (KY)
Morgan Griffith (VA)
Gus Bilirakis (FL)
Renee Ellmers (NC)
Joe Barton (TX)
Fred Upton (MI)

Democrats
Ranking Member: Frank Pallone, Jr. (NJ)
John D. Dingell (MI)
Eliot L. Engel (NY)
Lois Capps (CA)
Jan Schakowsky (IL)
Jim Matheson (UT)
Gene Green (TX)
G.K. Butterfield (NC)
John Barrow (GA)
Donna M. Christensen (VI)
Kathy Castor (FL)
John Sarbanes (MD)
Henry A. Waxman (CA)

Or you could email the committee directly cures@mail.house.gov. I sent them a letter for what ever its worth.