Tom Kindlon
Senior Member
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Peter Denton White/Queen Mary, University of London have again refused to release data from the PACE Trial, which cost £5 million of UK taxpayers' money and was supposed to be (using their own description) the "definitive" trial of CBT, GET, adaptive pacing therapy and no individual therapy.
They claim a request for the 6-minute walking test results for the (so-called) recovered group is "vexatious."
Many will recall the extremely odd definition of recovery the authors published. People could be classed as recovered with a SF-36 physical function score of 60, meaning one could deteriorate from an entry level of 65 (which represented disabling fatigue) and be counted as recovered.
https://www.whatdotheyknow.com/request/raw_data_for_6mwt
They claim a request for the 6-minute walking test results for the (so-called) recovered group is "vexatious."
Many will recall the extremely odd definition of recovery the authors published. People could be classed as recovered with a SF-36 physical function score of 60, meaning one could deteriorate from an entry level of 65 (which represented disabling fatigue) and be counted as recovered.
https://www.whatdotheyknow.com/request/raw_data_for_6mwt