Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Action for me are the biggest ME charity in the uk that support me patients.ah well that sounds ok'ish then, minus going more indepth. apparently everyone knows someone with it now. the numbers and the personal experience of friends or families will change things hopefully. unfortunate that it takes more suffering to bring awareness. and gahh! at the neighbour! they probably think you have bad spirits hanging around im surrounded by neighbours who hate me :thumbdown:
action for M.E. don't really represent the me/cfs community do they?
Action for me are the biggest ME charity in the uk that support me patients.
unfortunate that it takes more suffering to bring awareness. and gahh! at the neighbour! they probably think you have bad spirits hanging around im surrounded by neighbours who hate me :thumbdown: