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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I did 3 with Dr Shepard. It didn't help. If FMT's do help CFS then we probably need FMTs a few times a week for a long time (maybe years) from a perfect donor. I don't think doing just 3 is enough.I am italian, I would like to have testimonials from CFS sufferers who did FMT with a VERY good doctor
(like prof.Brandt, doctor Shepard or others).
Thank you very much for your kind reply
best Cecilia
yesWhat's FMT? Is that fecal transplant?
Did you have enema or colonscopy ? Did doctor Shepard give you instructions to make enema at home ?I did 3 with Dr Shepard. It didn't help. If FMT's do help CFS then we probably need FMTs a few times a week for a long time (maybe years) from a perfect donor. I don't think doing just 3 is enough.
I did 3 because that is what he recommended to start off with and then to wait a week or two to see if there is an improvement. Sure I could have done more, but this costs money and time.Did you have enema or colonscopy ? Did doctor Shepard give you instructions to make enema at home ?
Why did you make only three ?
Thanks for your informations, I would like to come in Tampa (I have the donor in my family).
regards Cecilia
There's a thread here about that that was started last month. I can't remember who started it.
I didn't do this with a Doctor but I do think its a worthwhile treatment, especially if you have IBS. Like I said before, it didn't seem to be a CFS cure for me but it was definitely helpful… I could tell, smell, and see a difference. I honestly think I would go so far as to say that everyone with IBS symptoms should have it done.
How did you do it on your own? Did you get special stool tests and blood tests for the donor? I'm in contact with several healthy indigenous people who are on perfect diets. Thinking of doing a FMT. Please share any instructions or links you have.