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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Any report on what's new/different in the 2014 edition? The sections all have the same titles. Doesn't look like there's any more about immune dysfunction or pathogens, which is a disappointment. I haven't read the document through to compare it to the the original edition, though.
It's still the best treatment document we have, IMO.
You could write to them with points, typos, etc. I wrote to them with quite a lot of points on the 2012 edition (and would like to think it might have helped).The updated Primer is an improvement but imo it is still in a draft version. I am not downloading it until they correct the typos, and other errors in it.
Comments and suggestions on the Primer are welcome (To: admin@iacfsme.org; Subject line: Primer comments/questions).
You could write to them with points, typos, etc. I wrote to them with quite a lot of points on the 2012 edition (and would like to think it might have helped).
They say: