Video: A Model of Understanding the PACE Trial (new, March 28, 2014)

[Dolphin]

A cheeky new video:

It must have taken a lot of work to create.

Note: Initially, I couldn't read most of the quotes regarding the people who attended the meeting on malingering. However, once I changed my YouTube setting to high quality and re-started the video, I was able to see them clearly then.

 

[Esther12]

Put up by maxwhd, who posts a lot of interesting documents on twitter.

It must have taken a lot of work to create.

I was thinking that... considering how much work went in to it, it seems targeted at a pretty small audience! If I didn't already have a good grounding in that stuff I think I'd have found it pretty baffling. Maybe he was teaching himself video editing stuff?

 

[Dolphin]

Put up by maxwhd, who posts a lot of interesting documents on twitter

Agree.

It must have taken a lot of work to create.

I was thinking that... considering how much work went in to it, it seems targeted at a pretty small audience! If I didn't already have a good grounding in that stuff I think I'd have found it pretty baffling. Maybe he was teaching himself video editing stuff?

Pent up frustration can take many forms. And that's probably good as different items may reach out to different people.

 

[Esther12]

Agree.

Pent up frustration can take many forms. And that's probably good as different items may reach out to different people.

My frustration tends to take the 'muttering malevolently to oneself at inopportune moments' form. It's not the most effective form of political campaigning.

 

[Dolphin]

(In case anyone missed it)
The journalist, David Tuller DrPH, on Wednesday posted a substantial piece on the PACE Trial:

TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study
http://www.virology.ws/2015/10/21/trial-by-error-i/

There's an introduction and summary at the start if you don't want to take on the whole thing.

It's being discussed in this PR thread:
http://forums.phoenixrising.me/inde...he-pace-chronic-fatigue-syndrome-study.40664/

ME Network have also posted their own summary piece:
http://www.meaction.net/2015/10/21/david-tuller-tears-apart-pace-trial/

Part two of David Tuller's piece is at:
http://www.virology.ws/2015/10/22/trial-by-error-ii/

Cort Johnson has done one of his easy-to-read pieces on it here:

http://www.cortjohnson.org/blog/201...-chronic-fatigue-syndrome-pace-cbt-get-trial/