- Messages
- 87
Are their any tests I can get done to see if MCAD or mastocytosis could be an issue for me? Or any lifestyle changes I can make that would indicate an Mast Cell problem if they helped?
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
You might be interested in this talk. Dr. Castells 'debunks' H1/H2 use prophylactically. For me, all pharmaceuticals push me into histamine reactions. The supps I listed have been wonderful for counteracting the effects once histamines are stimulated. Re bone marrow: I'd never agree to invasive procedure, especially just to label a problem I know I have. Dr. Theoharides vid linked above talks about how much more prevalent these disorders are than generally suspected.I'm also using the drug cocktail recommended by Dr. Afrin - an H1 and H2 blocker and klonopin because benzodiazepines are mast cell stabilizers, but I think avoiding high histamine foods has made the biggest difference for me.
@camas, You might be interested in this talk. Dr. Castells 'debunks' H1/H2 use prophylactically. For me, all pharmaceuticals push me into histamine reactions. The supps I listed have been wonderful for counteracting the effects once histamines are stimulated. Re bone marrow: I'd never agree to invasive procedure, especially just to label a problem I know I have. Dr. Theoharides vid linked above talks about how much more prevalent these disorders are than generally suspected.
http://thelowhistaminechef.com/dr-janice-joneja-histamine-intolerance-interview-pt2/
Is MCAS reversible over time?
And im sorry to hear of your husband
When you guys eat something high in histamine, is your reaction immediate? Or does it take a few hours before you start to feel the effects from it?