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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Make a comment on NPR article of ME/CFS

Seven7

Seven
Messages
3,444
Location
USA
:nervous::wide-eyed: I'm not deceased yet!:wide-eyed::nervous:

;)
Seriously though, your suggestion to comment and make ourselves visible is an excellent one. We have to take these opportunities when we get them.
LOL how do you spell it???
 

Seven7

Seven
Messages
3,444
Location
USA
They deleted my comment I had to type it all again! I wonder what was even offensive about it. I re-posted I will see if they leave it up. I am copying all that people post so We can keep the deleted comments.
 

SOC

Senior Member
Messages
7,849
They deleted my comment I had to type it all again! I wonder what was even offensive about it. I re-posted I will see if they leave it up. I am copying all that people post so We can keep the deleted comments.
Seriously? I have a hard time believing you wrote anything delete-worthy. :) We'll have to see how this plays out.
 

Seven7

Seven
Messages
3,444
Location
USA
Well I said, thank you for covering this story this is one of the biggest health epidemics cover ups or something like that!!!