I also love Ren's basic idea (more below, #2 & #3).
But my preference would be:
(I had a long answer, but I have those arguments posted elsewhere. I'll reword them here if necessary.)
1) My first comment would be for PR to completely boycott the IOM meeting: They do not exist in our eyes. Turn our attention / batteries toward our own experts, acknowledge, validate and fully support their decision to adopt the CCC, unwaveringly. If you have to respond in some way, tell IOM (HHS) that "
We the Patients, for whom you work, did not authorize this ambush agreement between HHS and IOM. Our long-time experts are our trusted, worthy advisers; the government once again - like so many times before - has proven itself unworthy of our trust. You are fired."
If you insist on wasting precious energy by going in person, say this loud and clear, then turn and walk out. Make no apologies. If anyone deserves an apology, it's the patients, as Dr. Montoya rightly says.
(I saw Adin mentioned "esteem". The only esteem I have is for our ME and cfs experts who have stood with us through decades of their own ridicule. It is the very crowd of esteem-seeking, main-stream medicine people, like those at IOM, who have dismissed us and/or fed us to the shrinks for 30 years.)
2) Now, Back to Ren's comment: If you insist on acknowledging this unauthorized group,
go with Ren's point #s 1 & 2. Maybe slight rewording
, like,
"This secret contract is not wanted and was not authorized by the constituents it is alleged to represent".
3) Then, with whatever time you have left (3, 5, 7 min - who knows?), as Ren suggests
: Therefore, we will use our time "...to honor all those - civilians and veterans - who have died "naturally" or by their own hand, due to past and present state-and-corporate coerced medical negligence..." and
begin reading the long list names on the Memorial List(s). Start with the most fresh in our minds and notable:
Casey Fero
Tom Hennessy
Sophia Mirza
Lynn Gilderdale
Nancy Kaiser (Dr. Dan Peterson's "Patient 00") ...
... and add the years our fellow patients died, starting way back in the late 80s.
http://www.ncf-net.org/memorial.htm
I guarantee you will raise the roof on that 'meeting' by doing either of these things. And bedridden patients in dark rooms across the world will be flipping their Bics to honor PR as heros!