I'm not sure if this belongs in the IOM section, but I have obtained new information about the NIH's Pathways to Prevention Workshop. This was previously called the Evidence-based Methodology Workshop, and is one of the three case definition-related efforts going on (CDC Multisite and IOM being the other two). The IOM contract specifically requires IOM to seek input from the NIH meeting.
The Working Group that is planning the meeting is getting together today and tomorrow at NIH. NIH has refused to disclose the names of the members. They will be finalizing the study questions that will be used for the AHRQ evidence review. NIH and AHRQ have also refused to disclose those questions.
However, I obtained the evidence review contract through a FOIA and it includes the draft questions. Surprise! There are some problems with the questions.
I also learned that the P2P process BY DESIGN will include NO ME/CFS experts on the Workshop panel (which is different from the Working Group). This panel will oversee the Workshop and draft the final report, which will likely include recommendations on research needs and case definition use.
This is a really big deal, and it's flying under the radar because we're all so focused on IOM. I hope you will read the full post because I think we need to pay attention, especially since this process will feed into the IOM process.
http://www.occupycfs.com/2014/01/06/behind-closed-doors/
The Working Group that is planning the meeting is getting together today and tomorrow at NIH. NIH has refused to disclose the names of the members. They will be finalizing the study questions that will be used for the AHRQ evidence review. NIH and AHRQ have also refused to disclose those questions.
However, I obtained the evidence review contract through a FOIA and it includes the draft questions. Surprise! There are some problems with the questions.
I also learned that the P2P process BY DESIGN will include NO ME/CFS experts on the Workshop panel (which is different from the Working Group). This panel will oversee the Workshop and draft the final report, which will likely include recommendations on research needs and case definition use.
This is a really big deal, and it's flying under the radar because we're all so focused on IOM. I hope you will read the full post because I think we need to pay attention, especially since this process will feed into the IOM process.
http://www.occupycfs.com/2014/01/06/behind-closed-doors/