That's interesting - what test(s) did you have?
Firstly I had a bout of extreme stomach cramps that lasted about ten days that were never explained. During which I was exhausted.
My stools were soft, kind of runny for a month or two but seemed to normalise by them self but I was left with this fatigue unlike anything else I had felt previously.
I have had two colonoscopys that say everything is fine.
Twice I have had fecal testing done with bioscreen and I have dysbiosis. I never really read to much into this as I figured that this would probably be the case for 95% of the population.
However in the years since then people are saying treating this can make a difference. Ken lassesen has a blog, (cfs remission) that talks about this and a member on here at PR, Elph seems to think he is on to something similar.
I have taken antibiotics to correct the dysbiosis and they immediately had a huge effect but I was unable to continue it due to dr unwillingness.
None of my stomach tests have ever suggested I have a candida problem but I have taken nystatin for a few weeks at a time twice but never noticed anything. But on a third occasion I took one dose of nystatin and one hour felt 50% better. However subsequent doses did nothing.
There have been times when I have eaten yogurt and felt a dramatic improvement but again, one day it works and the next it does not.
I have also noticed some improvement from eating only meat and veg. Exactly why this is, is too hard to tell.
On a few occasions I have gone to the toilet and imediatly felt much better.
In my first few years of illness I would tend to feel better when I didn't eat. Now I just feel that shit always that it doesn't seem to make any difference.
My grandfather died of bowel cancer and my brother has crohns disease so maybe there is some weakness there in the gut?
Who f@&king knows. There are so many questions and no answers and the thing seems to keep moving around. You find something that seems to start helping and you get your hopes up and then for no apparent reason it just stops helping. It's a joke.
Ha ha sorry about that. It's the not knowing that really pisses me off. If they could just tell me, you feel like shit and your life is screwed because X isn't doing what is supposed to or Y doesn't work any more.
I could handle that a whole lot better than, oh well, your f@$ked, but we don't know why and we aren't interested in finding out either. And by the way we still expect you to function like everyone else.