OI symptoms can be related to EDS...or not! Though I had very mild OI symptoms earlier in life, my major ones came on overnight as a result of the autonomic dysfunction that arose during an ME crash.
OI often appears suddenly in teenagers after a Mono infection, so "arising later in life" is anecdotal and not the norm.
EDS symptoms are not identical with ME thought there are some in common--look at the International Consensus Criteria for ME. Many ME symptoms are the result of damage done by viral and bacterial infections. These are not part of EDS. Treatment of viruses and bacterial infections in ME patients usually brings a significant reduction of OI and other manifestations of dysautonomia.
The lab tests of ME patients show a great deal of immune dysfunction and many types of pathogens--viral, intracellular and blood borne. These are not related to EDS. PEN is also not found in EDS patients who do not have ME.
Sushi
I have read the International consensus criteria for ME - and the Canadian ones and the other criteria as well.
EDSers ARE indeed prone to frequent viral and bacterial infection and other immune issues like allergies and IBS
"arising later in life" ? - everything so far is anecdotal really as we have no stats to base any real discussion on alas - for some symptoms arise earlier than others - but for others they arise later - but then unless we are fully aware of all the symptoms how can we discuss this? for example how man suffer notion sickness and ear infections in childhood and do not realise this may be connected - an early symptom?
"Many ME symptoms are the result of damage done by viral and bacterial infections"
??
there is NO evidence to support this statement alas either
could you stat precisely which symptoms?
PEM - post exertional malaise - yes it IS a feature of EDS - often very severe.
viral pathogens? none have been identified that typify the disease as yet.
EDSers are extremely prone to all kinds of frequent viral infections and have them regularly - possibly due to immune dysfunction.
I do not think enough testing and studies on dysautonomia and syncope have been done to make any broad sweeping statements about whether treatment of any viruses or bacteria reduces the incidence of OI /POTS - most PWME have never even been tested for OI/POTS at all - let alone have changes over time/ and in relation to viruses/bacterial infections studied.
I wish such work had been done - alas it has not.
A