Nielk
Senior Member
- Messages
- 6,970
Wildaisy posted:
http://www.mecfsforums.com/index.php/topic,18019.0.html
The National CFIDS Foundation has been asked for our stance on the IOM
redefining the illness of what the DHHS refers to as chronic fatigue
syndrome/myalgic encephalomyelitis. That referral seems partricularly strange to us as
the CDC took ME off their diagnostic code in the United States many years
ago so no physician is able to diagnose ME although eliminating that
terminology has certainly not eliminated the illness. It is the reason that we
refer to our own illness (we are an all volunteer federally approved charity) as
CFIDS and never use the CFS term since the ID (immune dysfunction) cannot
be dealt with until a therapy can be aimed at the specific cause of the
illness.
The NCF is against the Institute of Medicine and their "efforts". Our
government has already proven more than capable of ignoring scientific work with
Gulf War Illness and given it a much more obscure name by the IOM just as a
CDC committee did with ME decades ago and whose committee members became
authors of the first Holmes criteria.
Gail Kansky
President, National CFIDS Foundation
103 Aletha Rd.
Needham, MA 02492-3931
http://www.NCF-NET.org
781-449-3535
http://www.mecfsforums.com/index.php/topic,18019.0.html
The National CFIDS Foundation has been asked for our stance on the IOM
redefining the illness of what the DHHS refers to as chronic fatigue
syndrome/myalgic encephalomyelitis. That referral seems partricularly strange to us as
the CDC took ME off their diagnostic code in the United States many years
ago so no physician is able to diagnose ME although eliminating that
terminology has certainly not eliminated the illness. It is the reason that we
refer to our own illness (we are an all volunteer federally approved charity) as
CFIDS and never use the CFS term since the ID (immune dysfunction) cannot
be dealt with until a therapy can be aimed at the specific cause of the
illness.
The NCF is against the Institute of Medicine and their "efforts". Our
government has already proven more than capable of ignoring scientific work with
Gulf War Illness and given it a much more obscure name by the IOM just as a
CDC committee did with ME decades ago and whose committee members became
authors of the first Holmes criteria.
Gail Kansky
President, National CFIDS Foundation
103 Aletha Rd.
Needham, MA 02492-3931
http://www.NCF-NET.org
781-449-3535