Results of my poor man's tilt test...
108/77 - 68 - lying down
119/80 - 91 - standing up -12:30
116/91 - 106 - 12:32
111/81 - 105 - 12:35
97/73 - 103 - 12:36
74/48 - 68 - 12:37 At this point I had to lie down flat or I was going down.
I stood perfectly still, no fidgeting or talking. Within a minute or two, I was very nauseated, felt pressure on the side of my neck, and palpitations.
I fainted several times as a child and have always been tired. (I'm 50 now) Sleep does seem to help my tiredness, 10 hours a night feels pretty good but I get about 7 to 8 hours. Naps help but most of the time I can't take naps. I do work a desk job 8 hours/3 days a week and my one foot is always fidgeting.
Whenever I do stand in church or grocery store, I will get nauseated if I stop walking and know to start fidgeting to control it. But the constant nausea does get to be a pain. I am able to exercise and actually feel better as long as I am constantly moving.
I did mention this to my doctor who did not think it was the cause of my fatigue but did refer me to a urologist who did some tests and basically told me not to stand up still.
I did try to up my fluids and salt but it did not seem to help.
I am going to a new PCP this week but the doctors don't seem to know anything about NMH or POTS.
Is NMH causing my fatigue or is NMH is happening because I am fatigued? I did have anemia as a child and took iron supplements. Also had it and took iron for about 3 months last year but then my levels were good. I felt no better on them though.
108/77 - 68 - lying down
119/80 - 91 - standing up -12:30
116/91 - 106 - 12:32
111/81 - 105 - 12:35
97/73 - 103 - 12:36
74/48 - 68 - 12:37 At this point I had to lie down flat or I was going down.
I stood perfectly still, no fidgeting or talking. Within a minute or two, I was very nauseated, felt pressure on the side of my neck, and palpitations.
I fainted several times as a child and have always been tired. (I'm 50 now) Sleep does seem to help my tiredness, 10 hours a night feels pretty good but I get about 7 to 8 hours. Naps help but most of the time I can't take naps. I do work a desk job 8 hours/3 days a week and my one foot is always fidgeting.
Whenever I do stand in church or grocery store, I will get nauseated if I stop walking and know to start fidgeting to control it. But the constant nausea does get to be a pain. I am able to exercise and actually feel better as long as I am constantly moving.
I did mention this to my doctor who did not think it was the cause of my fatigue but did refer me to a urologist who did some tests and basically told me not to stand up still.
I did try to up my fluids and salt but it did not seem to help.
I am going to a new PCP this week but the doctors don't seem to know anything about NMH or POTS.
Is NMH causing my fatigue or is NMH is happening because I am fatigued? I did have anemia as a child and took iron supplements. Also had it and took iron for about 3 months last year but then my levels were good. I felt no better on them though.