Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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mine scarely went down to 34.4 this morning! It has scared the life out of me as i've been feeling a lot better after the LP, but my symptoms have been increasingly returning lately. The low temperature issue has been with me since the beginning of my illness, and my children with ME suffer in the same way. My palms go very white and blotchy and my fingers seem to die and go all squidgy as though there's no blood running through them, has anyone got any clues as to what these symptoms are caused by?
Hi, all.
For what it's worth, there is a published study in the literature in which the actual core temperature (deep inside) was measured in PWCs, and it came out normal.
Hi Rich,
Do you remember anything more about this article? Author? Title? I'd love to read it.
Thanks,
Kim