List of CFS and ME organisations

[Snow Leopard]

Does anyone know of any comprehensive lists (or regional list) of CFS and ME organisations? Hopefully covering the whole spectrum, from advocacy to support groups.

 

[Clodomir]

There was one on this forum...
But where, i don't remember...
Maybe it is better asking each member and make a list for every country?

Clodomir

 

[Snow Leopard]

Ah, there is a list support groups, a decent list but not exactly comprehensive.

http://phoenixrising.me/resources/support-group-websites

 

[Clodomir]

The list is not complete...
Nothing about belgium....

http://www.wakeupcallbeweging.be/
http://www.me-cvs.be/
http://www.euro-me.org/about.htm

They are maybe others,...

Clodomir

 

[Tuha]

Does anyone know of any comprehensive lists (or regional list) of CFS and ME organisations? Hopefully covering the whole spectrum, from advocacy to support groups.

here is a list:
http://mecfsforums.com/wiki/Organizations_for_ME/CFS

 

[Clodomir]

Thanks,

But the list is not complete and some adress/ organisations are not valid anymore for Belgium

Clodomir

 

[Mark]

Ah, there is a list support groups, a decent list but not exactly comprehensive.

http://phoenixrising.me/resources/support-group-websites

This page is something I've wanted to update for quite a while now - and there are lots of other pages on the website which need reviewing and updating. We made a bit of a start with the list in this article:
http://phoenixrising.me/archives/17334

If a group of members could work on such a list for us that would be great.