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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Ive had problems with two viruses in my life one was Measels the other EBV and i now find i have a rare genetic disorder i suspect this is why im bad with viruses.
Aluminium...wasn't that what was dumped into the drinking supply in Camelford?
http://www.telegraph.co.uk/health/9119528/Is-aluminium-really-a-silent-killer.html
Which raises a question. I have on occasion been asked if I have Aspergers (Asperger Syndrome). If, and I am not saying it is, CFS is a form of adult onset autism (and I have toyed with this idea before) then maybe that's why so many of us resemble Aspies, either superficially or completely. I wonder what people think about this? Does anyone else experience like me of being identified as having Aspergers, even though I don't technically meet the formal definition (I think)?
I come out at 34. I am not an Aspie. My partner is though.
I agree. If I were healthy, I would answer many of those questions much differently.
Thank you both for posting. I forgot to say, like others have said, in a different way, that kids who develop autism have never learned or gained many skills, while most people with ME, have probably already developed basic living skills.
My best friend has a child who has Down's Syndrome and ASD. For her daughter, it was not the flu, but a flu shot, that caused her to develop autism. So, in terms of illnesses, I guess you can say the child does get a virus from a vaccine, and then regresses. Every child is different, just like I know that every one of you have multiple underlying illnesses that are causing ME. Roughly 30% of children who have DS now have autism as well.
I read a study recently that linked linked women who have thyroid disorders and their children having autism. I have T3 dysfunction only. I am not sure if I had it when I was pregnant. Last fall, I did have pretty bad fatigue, flashes of hot and cold in my body, and a difference in my monthly cycle. Once I started taking Cytomel, most of my symptoms have disappeared. I still have a lack of motivation or some fatigue still, but I do not know what it is from.
For me, "autism" is a nightmare that doesn't end. Everything in my life revolves around my son's diet, medications or supplements, and MD visits. I think there is a chance that I retained mercury and/or viruses from 6 shots that I had in the 1990s and 2001. I had some of the worst ones.....MMR, HEP B series, and two flu shots. One woman who I know through Facebook, says that pregnancy is the "best chelator", but I think she meant this in terms of giving viruses to the baby also.
I have an "anxiety gene" in my mom's family. Several of us have gone through periods of have panic attacks. Mix that with my husband's family history, and you get a child who has a strong chance of having immune problems and autism. My late father-in-law had a severe heart attack at age 53, and died 5 weeks later. I have read that 1 in 3 children who have an ASD have a close relative who has had an early onset heart attack. (Kenneth Bock MD wrote this in his book.). Both my brother and my brother-in-law had problems as children with constipation.
GcMAF, MB12 shots, and a dairy free diet have been the most significant factors in in my son's healing so far.
I am wondering if anyone on/in this forum has PANDAS or PITAND? It is a strep infection in the brain. It is very hard to get rid of.
Madison
I think the problem with comparing Autism and CFS is difficult because the medical world still divides us up according to major symptoms without really identifying where those symptoms are coming from.