maddietod
Senior Member
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About a year ago I took my blood pressure and pulse in bed 1st am and 10 minutes after being up and about. 4 of the days look pretty normal - systolic went down 3, 7, 12, 15 points while pulse went up 6, 17, 12, and 3. Diastolic went up or down +2, -1, +2, and -12.
3 non-consecutive days looked like this:
131/75 (58) 109/71 (68)
114/67 (62) 79/87 (80)
127/84 (68) 93/63 (71)
Curious, I also took my blood pressure during the day, and it fluctuated so wildly that I returned 2 meters thinking they were broken.
I was told to salt load and increase fluids to keep systolic over 100. I did this, it worked, I got irritated with the salt water and the blood pressure cuff and stopped.
My new local doctor put me on generic Florinef 0.1mg in the morning. This immediately put me over the edge re daytime tiredness, and I quit after 2 days. I then peed unceasingly for 2 days.
I'm drinking 3 cups of water salted so it tastes salty but not nasty (himalayan sea salt). This is certainly not even 0.5g salt. **EDIT** I measured and it's about 1.5g of sodium.
I'm curious to test myself for OI again.
Here are my questions:
**Is it unusual for OI to be intermittent? Some days readings sort of normal, some days not?
**Is there a best way to test? I saw that Dr. Bell tests lying down, then standing, every 4 minutes for a long time. Dr. Rey does it this way. I'm doing this for myself, and secondarily as information I'll give to my new doctor. He'll order a tilt table test if I want it, but that feels like overkill.
**Has anybody else had this tiredness issue with florinef? I'd rather be medicine-free, but I'm sick of salt water. Could I take the florinef at night? I have insomnia anyway. [I would talk to my doctor...just looking for your experiences.]
3 non-consecutive days looked like this:
131/75 (58) 109/71 (68)
114/67 (62) 79/87 (80)
127/84 (68) 93/63 (71)
Curious, I also took my blood pressure during the day, and it fluctuated so wildly that I returned 2 meters thinking they were broken.
I was told to salt load and increase fluids to keep systolic over 100. I did this, it worked, I got irritated with the salt water and the blood pressure cuff and stopped.
My new local doctor put me on generic Florinef 0.1mg in the morning. This immediately put me over the edge re daytime tiredness, and I quit after 2 days. I then peed unceasingly for 2 days.
I'm drinking 3 cups of water salted so it tastes salty but not nasty (himalayan sea salt). This is certainly not even 0.5g salt. **EDIT** I measured and it's about 1.5g of sodium.
I'm curious to test myself for OI again.
Here are my questions:
**Is it unusual for OI to be intermittent? Some days readings sort of normal, some days not?
**Is there a best way to test? I saw that Dr. Bell tests lying down, then standing, every 4 minutes for a long time. Dr. Rey does it this way. I'm doing this for myself, and secondarily as information I'll give to my new doctor. He'll order a tilt table test if I want it, but that feels like overkill.
**Has anybody else had this tiredness issue with florinef? I'd rather be medicine-free, but I'm sick of salt water. Could I take the florinef at night? I have insomnia anyway. [I would talk to my doctor...just looking for your experiences.]