Misfit Toy
Senior Member
- Messages
- 4,178
- Location
- USA
The gene test doesnt diagnose celiac disease. All it does is say if one is suspectable to this illness or not. It can help to rule it out in many but for many who do carry this gene like myself, one is left still not knowing if one has celiac disease or not unless it shows up on other tests as well.
There is so much info out there about Celiac and it's all conflicting. I just read that the gene test is a huge marker in diagnosis. Then I read if you have low IgA and a positive blood work saying you have or are making antiboidies to gluten, you have it. That's what I have along with a stool test. But, the absolute GOLD standard on diagnosis is the biopsy where they can see if the villa are no longer existent. BUT, even that is not the gold standard, which I found out from the Celiac support group. I was told that if I had the biopsy, I would need to eat 6 pieces of bread everyday for 3 months in order to do the biopsy. I opted against it. So, I am gluten free. Completely, but it's only been a few weeks. The biggest thing I have noted is that I am not reacting to EVERYTHING anymore. Thank God. Because I am consistently coming back with blood work that says I have Celiac, I am going with that. What's the harm in just avoiding gluten...it will only benefit me because clearly something is up if I eat it and then run to the bathroom and itch for 2 days.
Celiac runs in my family.