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the psych lobby strikes again: DSM-5 v. WHO's ICD in the US

V99

Senior Member
Messages
1,471
Location
UK
The site is up. Just had a quick look.

Complex Somatic Symptom Disorder
Proposed RevisionRationaleSeverityDSM-IV

Complex Somatic Symptom Disorder (includes previous diagnoses of Somatization Disorder, Undifferentiated Somatoform Disorder, Hypochondriasis, Pain Disorder Associated With Both Psychological Factors and a General Medical Condition, and Pain Disorder Associated With Psychological Factors)

To meet criteria for CSSD, criteria A, B, and C are necessary.

A. Somatic symptoms:

Multiple somatic symptoms that are distressing, or one severe symptom

B. Misattributions, excessive concern or preoccupation with symptoms and illness: At least two of the following are required to meet this criterion:

(1) High level of health-related anxiety.

(2) Normal bodily symptoms are viewed as threatening and harmful

(3) A tendency to assume the worst about their health (catastrophizing).

(4) Belief in the medical seriousness of their symptoms despite evidence to the contrary.

(5) Health concerns assume a central role in their lives

C. Chronicity: Although any one symptom may not be continuously present, the state of being symptomatic is chronic and persistent (at least 6 months).

The following optional specifiers may be applied to a diagnosis of CSSD where one of the following dominates the clinical presentation:

XXX.1 Multiplicity of somatic complaints (previously, somatization disorder)

XXX.2 High health anxiety (previously, hypochondriasis) {If patients present solely with health-related anxiety in the absence of somatic symptoms, they may be more appropriately diagnosed as having an anxiety disorder.} *

XXX.3 Pain disorder. This classification is reserved for individuals presenting predominantly with pain complaints who also have many of the features described under criterion B. Patients with other presentations of pain may better fit other psychiatric diagnoses such as major depression or adjustment disorder.

For assessing severity of this disorder, metrics are available for rating degree of somatic symptoms (see for instance PHQ, Kroenke et al, 2002). Scales are also available for assessing severity of the patients misattributions, excessive concerns and preoccupations (see for instance Whiteley inventory, Pilowsky , 1967).

*Note: Both the Somatic Symptom Disorders Work Group and The Anxiety, Obsessive-Compulsive Spectrum, Posttraumatic, and Dissociative Disorders Work Group are considering the possibility that what was described as Hypochondriasis in DSM-IV may represent a heterogeneous disorder in which some individuals may be better considered to have CSSD and some may be better considered to have an anxiety disorder. There will be ongoing discussion of this issue.

Please see full disorder desctiptions here.

Major change #1: Rename Somatoform disorders to Somatic Symptom Disorders and combine with PFAMC and Factitious Disorders

The workgroup suggests combining Somatoform Disorders, Psychological Factors Affecting Medical Condition (PFAMC), and Factitious Disorders into one group entitled Somatic Symptom Disorders because the common feature of these disorders is the central place in the clinical presentation of physical symptoms and/or concern about medical illness. The grouping of these disorders in a single section is based on clinical utility (these patients are mainly encountered in general medical settings), rather than assumptions regarding shared etiology or mechanism.

Major change #3: Combine somatization disorder, hypochondriasis, undifferentiated somatoform disorder, and pain disorder into a new category entitled Complex Somatic Symptom Disorder (CSSD)

Combine somatization disorder, hypochondriasis, undifferentiated somatoform disorder, and pain disorder into a new category entitled Complex Somatic Symptom Disorder (CSSD) which emphasizes the symptoms plus the patients abnormal cognitions (Barsky, Lowe, Rief). The term complex is intended to denote that in order for this diagnosis to be made, the symptoms must be persistent and must include both somatic symptoms (criterion A) as well as cognitive distortions (criterion B).

This is a major change in the diagnostic nomenclature, and it will likely have a major impact on diagnosis. It clarifies that a diagnosis of CSSD is inappropriate in the presence of only unexplained medical symptoms. Similarly, in conditions such as irritable bowel syndrome, CSSD should not be coded unless the other criterion (criterion Battributions, etc) is present.

It is unclear how these changes would affect the base rate of disorders now recognized as somatoform disorders. One might conclude that the rate of diagnosis of CSSD would fall, particularly if some disorders previously diagnosed as somatoform were now diagnosed elsewhere (such as adjustment disorder). On the other hand, there are also considerable data to suggest that physicians actively avoid using the older diagnoses because they find them confusing or pejorative. So, with the CSSD classification, there may be an increase in diagnosis.

The proposal is to group together these heretofore separately recognized disorders because in fact, there are 3 diverse sources suggesting considerable overlap among them.

1. A 2009 study found that 52% of physicians surveyed indicated that there was a lot of overlap and an additional 38% thought that there was some overlap across these disorders. In contrast, less than 2% of physician respondents felt that these were distinctly different disorders (Dimsdale, Sharma, & Sharpe, unpublished).

2. There are limited data regarding overlap in clinical settings. One primary care study, for instance, found that 20% of somatization disorder patients also had hypochondriasis (Escobar, 1998). In primary care patients, somatization disorder was 5 times ( Fink et al 2004) to 20 times (Barsky et al 1992) more common in hypochondriasis patients as compared to primary care patients without hypochondriasis.

3. Treatment interventions are similar in this group of disorders. Cognitive behavior therapy (CBT) and antidepressant medications appear to be the most promising therapeutic approaches for hypochondriasis, somatization disorder, and pain disorder (Kroenke 2007; Sumathipala 2007). Although several variations of CBT have been employed, they share many elements in common. These include the identification and modification of dysfunctional and maladaptive beliefs about symptoms and disease, and behavioral techniques to alter illness and sick role behaviors and promote more effective coping. The literature on the use of antidepressants is more limited, but it too does not suggest any major distinctions in therapeutic response across these different disorders. In addition to these patient centered commonalities of treatment, all of these disorders benefit from specific interventions with the patients non-psychiatric physician (e.g. scheduling regular appointments as opposed to prn appointments, limiting testing and procedures unless clearly indicated) (Allen 2002).

A key issue is whether the guidelines for CSSD describe a valid construct and can be used reliably. A recent systematic review (Lowe, submitted for publication) shows that of all diagnostic proposals, only Somatic Symptom Disorder reflects all dimensions of current biopsychosocial models of somatization (construct validity) and goes beyond somatic symptom counts by including psychological and behavioral symptoms that are specific to somatization (descriptive validity). Predictive validity of most of the diagnostic proposals has not yet been investigated.



So if you have no cognitive symptoms, you dont have Complex Somatic Symptom Disorder?
What if some patients have no cognitvie symptoms, can a disease still be classified under Complex Somatic Symptom Disorder?
:confused:
 
R

Robin

Guest
Cognitive behavior therapy (CBT) and antidepressant medications appear to be the most promising therapeutic approaches for hypochondriasis, somatization disorder, and pain disorder (Kroenke 2007; Sumathipala 2007). Although several variations of CBT have been employed, they share many elements in common. These include the identification and modification of dysfunctional and maladaptive beliefs about symptoms and disease, and behavioral techniques to alter illness and sick role behaviors and promote more effective coping. The literature on the use of antidepressants is more limited, but it too does not suggest any major distinctions in therapeutic response across these different disorders. In addition to these patient centered commonalities of treatment, all of these disorders benefit from specific interventions with the patient’s non-psychiatric physician (e.g. scheduling regular appointments as opposed to prn appointments, limiting testing and procedures unless clearly indicated) (Allen 2002).

Wow, it's right out of the Wessely school handbook!
 

MEKoan

Senior Member
Messages
2,630
There was a great piece written about the way the DSM works in Harper's magazine:

The encyclopedia of insanity: A psychiatric handbook lists a madness for everyone

By L.J. (Lawrence J.) Davis

http://www.harpers.org/archive/1997/02/0008270

Not content with the merely weird, the DSM-IV also attempts to claim dominion over the mundane. Current among the many symptoms of the deranged mind are bad writing (315.2. and its associated symptom, poor handwriting); coffee drinking, including coffee nerves (305.90), bad coffee nerves (292.89), inability to sleep after drinking too much coffee (292.89), and something that probably has something to do with coffee, though the therapist cant put his finger on it (292.9); shyness (299.80, also known as Aspergers Disorder); sleepwalking (307.46); jet lag (307.45); snobbery (301. 7, a subset of Antisocial Personality Disorder); and insomnia (307.42); to say nothing of tobacco smoking, which includes both getting hooked (305.10) and going cold turkey (292.0). You were out of your mind the last time you had a nightmare (307.4 7). Clumsiness is now a mental illness (315.4). So is playing video games (Malingering, V65.2). So is doing just about anything vigorously. So, under certain circumstances, is falling asleep at night.

The foregoing list is neither random nor trivial, nor does it represent the sort of editorial oversight that occurs when, say, an otherwise reputable zoology text contains the claim that goats breathe through their ears. We are here confronted with a worldview where everything is a symptom and the predominant color is a shade of therapeutic gray. This has the advantage of making the therapists job bot remarkably simple and remarkably lucrative. Once the universe is populated with enough coffee-guzzling, cigarette-puffing, vigorous human beings who are crazy precisely because they smoke, drink coffee, and move about in an active and purposeful manner, the psychoanalyst is placed in the position of the lucky fellow taken to the mountaintop and shown powers and dominions. Here, hard science cannot attack with its niggling discoveries about bad brain chemicals and their effects on people who believe that gunplay is a perfectly reasonable response to disapproval, humor, or minor traffic accidents. Instead, the pages of the DSM-IV are replete with mental illnesses that have been hitherto regarded as perfectly normal behavior. The therapist is invited not merely to play God but to play lawyerto some minds, a superior callingand to indulge in a favorite diversion of the American legal profession known as recruiting a fee.
 

V99

Senior Member
Messages
1,471
Location
UK
Coffee nerves!!!

Does that include Ben and Jerry's Coffee Coffee Buzz Buzz Buzz.
 

julius

Watchoo lookin' at?
Messages
785
Location
Canada
I know this doesn't advance the objectives of this thread. But i'd like to make a point for any psychologists/psychiatrists who may be reading this thread.

Psychology is one of the most important of human endeavors at the present time. Trying to understand what makes us tick is what humanity ought to be up to. But that should be happening in the domain of research, and research only. Your profession is in an infantile stage of development. In fact, I would say it's barely embryonic. It doesn't even have arm buds, or any features which would suggest what creature it will be if and when the time comes that it is fully developed.

Please realize that you are not ready to be trying to diagnose or god forbid 'treat' anyone. Right now you are causing more harm than good.
 

oerganix

Senior Member
Messages
611
I know this doesn't advance the objectives of this thread. But i'd like to make a point for any psychologists/psychiatrists who may be reading this thread.

Psychology is one of the most important of human endeavors at the present time. Trying to understand what makes us tick is what humanity ought to be up to. But that should be happening in the domain of research, and research only. Your profession is in an infantile stage of development. In fact, I would say it's barely embryonic. It doesn't even have arm buds, or any features which would suggest what creature it will be if and when the time comes that it is fully developed.

Please realize that you are not ready to be trying to diagnose or god forbid 'treat' anyone. Right now you are causing more harm than good.

Good point. And I would like to point out that many of them know this to be true. In the discussion going on about the revision of the DSM there are psychologists who argue against the psychologizing of many diverse illnesses that many of their membership advocate. Some have accused their colleagues of being motivated by the profiting from prescriptons for drugs, etc, as well as for talk therapy, etc. One discussion there claimed that 54% had conflicts of interest such as owning stocks in drug companies that produce the drugs they prescribe. If they are talking about this amongst themselves, to me that is plenty of proof that this is going on and not some kind of paranoia on our part.

This is HUGE and the fact that this division is happening within the profession tells me it is very important that the public and other practitioners weigh in on this debate. We need to let them know we do not accept this psychologizing of organic illnesses, that we are awake to what is going on. Time for a lot of public comment from us.

quote_icon.png
Originally Posted by ME agenda
APA News Release here in PDF format: http://www.dsm5.org/Newsroom/Documen...NAL%202.05.pdf

New APA DSM-webpages: http://www.dsm5.org/Pages/Default.aspx

Public comment period runs from 10 February thru 20 April. Online registration required.


DSM-5 Watch site page: http://wp.me/PKrrB-jZ
 

mezombie

Senior Member
Messages
324
Location
East Coast city, USA
Another section to watch:

[
Minor Neurocognitive Disorder has been added to recognize the substantial clinical needs of individuals who have mild cognitive deficits in one or more of the same domains but can function independently (i.e., have intact instrumental activities of daily living), often through increased effort or compensatory strategies. This syndrome, known in many settings as Mild Cognitive Impairment may be particularly critical, as it may be a focus of early intervention. Early intervention efforts may enable the use of treatments that are not effective at more severe levels of impairment and/or neuronal damage, and, in the case of neurodegenerative disease, may enable a clinical trial to prevent or slow progression.


•Minor Neurocognitive Disorder is added to account for individuals with minor levels of cognitive impairment who may require assessment and treatment, but are not sufficiently impaired the Major diagnosis. To some extent, this entity will take care of individuals currently coded as Cognitive Disorder NOS without specific criteria. This change is driven by the need of such individuals for care, and by clinical; epidemiological; and radiological, pathological and biomarker research data suggesting that such a syndrome is a valid clinical entity with prognostic and potentially therapeutic implications. Prime examples are the prevalent neurocognitive disorders associated with various neuromedical conditions such as traumatic brain injury, HIV, substance-use-related brain disorders, diabetes, and early/mild stages of neurodegenerative disorders like Alzheimer’s disease and of cerebrovascular disease. As these conditions are increasingly seen in clinical practice, clinicians have a pressing need for reliable and valid diagnostic criteria in order to assess them and provide services including treatment of associated mood symptoms, further investigation of brain function, identification of treatable causes, and, for progressive disorders, appropriate early interventions.

•The Neurocognitive Disorders Work Group is aware that the specific term “minor” can be challenged on the grounds that it implies lack of need for services and are open to alternative suggestions. They chose "minor" rather than "mild" to be parallel with "major" and to be able to maintain the mild, moderate, and severe distinction within Major NCD.

•The combination of symptoms/observations and objective assessment is critical in Minor Neurocognitive Disorder to maintain specificity: a report of a change in abilities protects against overcalling the disorder in those with lifelong poor performance (since decline can only be inferred from a single observation), and objective assessment protects against overcalling the disorder in "the worried well."

•NOTE: The Neurocognitive Disorders Work Group is in the process of refining these criteria to achieve a balance between preferred formal neuropsychological assessment and what may be feasible in some clinical settings. The issue is particularly difficult for Minor Neurocognitive Disorder because at lesser levels of cognitive impairment symptom reports may be unavailable or unreliable, observation may be less informative, the interpretation of objective assessments is complicated by variable premorbid abilities, and simpler assessments are likely to be insensitive. They welcome input on this issue.

•NOTE: The Neurocognitive Disorders Work Group is still refining criterion D and discussing to what extent Minor Neurocognitive Disorder should be diagnosed in the setting of disorders like schizophrenia and depression. They also realize that issues of this nature are being addressed at the DSM-wide level and are awaiting input of these larger discussions, as well as public input on this issue.

Recommendations for severity criteria for this disorder are forthcoming. We encourage you to check our Web site regularly for updates.

This disorder is not listed in DSM-IV; therefore, DSM-IV criteria for this disorder do not exist.
Some individuals meeting criteria for Cognitive Disorder Not Otherwise Specified would meet criteria for Minor Neurocognitive Disorder.
 

julius

Watchoo lookin' at?
Messages
785
Location
Canada
oerganix,

I am acutely aware of the sinister things you mention. I don't think for a second that you are being paranoid. And I think this thread is a very important discussion.

But I know that there are some, especially rookie, or even student psychologists who actually think they are going to 'help' people. And if my comments could make even one of them consider going into (legitimate) research, then it was worth writing. Especially if that research is directed at understanding what motivates people act so greedily and selfishly that they would destroy millions of lives jsut to advance their careers or fatten their already sufficient bank accounts.

I don't have the cognitive faculties to really compete in this sort of complicated chess game, and I'm really happy i have people like you and the others on this thread on the front lines. All I can offer is my conclusions after having been a victim of these lot for 30 years.
 

mezombie

Senior Member
Messages
324
Location
East Coast city, USA
We need comments from the APA's peers

This is the time to ask around and identify anyone who is a psychiatrist or psychologist friendly to our situation who has the time and would be willing to comment on the proposed revisions.
 

fresh_eyes

happy to be here
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900
Location
mountains of north carolina

oerganix

Senior Member
Messages
611
This is the time to ask around and idenitfy anyone who is a psychiatrist or psychologist friendly to our situation who has the time and would be willing to comment on the proposed revisions.

I second that. I can only hope that my former shrink, who suffered from CFIDS too and had to quit work while I was his patient, is able to comment. He and I both knew that I had been assigned to him for CBT and that it was BS, just to keep the powers that be happy (state laws regarding my disability). So we had great conversations about whatever was on our minds that day and he renewed my prescription for the cheapest antidepressant drug on the market, which I bought using co-pay, and then flushed down the toilet, not wanting to "treat" the depression I didn't have, and having tried it to see if it would help with fatigue. It didn't.

Marie, a question: When they mention "pain syndrome" does that cover fibromyalgia or is that something else?
 

gracenote

All shall be well . . .
Messages
1,537
Location
Santa Rosa, CA
Hey all. Sorry for going MIA, y'all know how it is. I so appreciate folks keeping tabs on this topic - wish I had the brainpower to formulate an opinion on the proposed content, but I just don't right now. Thought you guys might like to check out this article, about the controversy over the DSM within the psychiatric community:

http://www.newscientist.com/article/mg20427381.300-psychiatrys-civil-war.html?page=1

Here are a couple of paragraphs from the article fresh eyes mentions: Psychiatry's Civil War.

The wording used in the DSM has a significance that goes far beyond questions of semantics. The diagnoses it enshrines affect what treatments people receive, and whether health insurers will fund them. They can also exacerbate social stigmas and may even be used to deem an individual such a grave danger to society that they are locked up.

Some of the most acrimonious arguments stem from worries about the pharmaceutical industry's influence over psychiatry. This has led to the spotlight being turned on the financial ties of those in charge of revising the manual, and has made any diagnostic changes that could expand the use of drugs especially controversial. "I think the DSM represents a lightning rod for all kinds of groups," says David Kupfer of the University of Pittsburgh, Pennsylvania, who heads the task force appointed by the APA to produce the revised manual.
 

mezombie

Senior Member
Messages
324
Location
East Coast city, USA
Marie, a question: When they mention "pain syndrome" does that cover fibromyalgia or is that something else?

Not sure, but I wouldn't be surprised. After all, fibromyalgia is considered a syndrome, a collection of symptoms. And while there is biomedical research explaining some of what happens in FM, it is not accepted by all. Plus diagnosis is by tenderpoint exam and a popular treatment is antidepressants such as Celexa. "Pain syndrome" would definitely cover myofascial pain syndrome (a close cousin to FM).

I think it would be very easy to diagnose FM as a "pain syndrome" for DSM5 purposes from what we know so far.
 
Messages
24
What about other health professionals, such as general practictioners, neurologists, internists, D.O.s, physical therapists, pain docs, etc--those who really see the illness close up and deal with it. Are they commenting on this? What do the APA folks know about any of this anyway, as they are not the ones that treat back problems, migraines, ibs, etc etc etc . . . Anyone see any thing printed from this aspect?
 

mezombie

Senior Member
Messages
324
Location
East Coast city, USA
What about other health professionals, such as general practictioners, neurologists, internists, D.O.s, physical therapists, pain docs, etc--those who really see the illness close up and deal with it. Are they commenting on this? What do the APA folks know about any of this anyway, as they are not the ones that treat back problems, migraines, ibs, etc etc etc . . . Anyone see any thing printed from this aspect?

We should definitely get these type of docs to comment on this. Many are clinicians and may not be aware of the potential problems the new DSM holds for us.

There is something in print on the difference between ME/CFS and Somatoformc Disorder in the Overview of the Canadian Consenus Document (starting on page 15).

There are also several good studies by Leonard Jason (a psychologist with ME/CFS) distinguishing between ME/CFS and psychiatric disorders. If you google his name you should be able to find his website.