• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Summary of 1400 Patient Responses to CFIDS Assn Online Survey

Gemini

Senior Member
Messages
1,176
Location
East Coast USA
CFIDS Assn online patient survey prior to FDA's Drug Development Workshop April 25-6 yielded over 1400 patient responses summarized here:

http://www.research1st.com/2013/05/29/fda_survey_results/

The CFIDS Assn may be correct in their conclusion about this survey:

"It is quite possible that this survey will turn out to be one of the most important patient-centered studies done to date. We will keep you updated as we dive deeper into your data."