- Messages
- 84
- Location
- United Kingdom
I got diagnosed in 2010 by prof julia newton, but the air flight there made me soo ill, have never recovered to that level. Was too sick to go back and they wouldn't post midodrine, so had to transfer my care to london prof matthias (as I thought he was the only other POTS dr in the country, clearly I was wrong).
3 years later and have only just been sent prescription!! it took a year before they took me in for tests, then bought me back for one more 6 months later. Then 7 months later finally had phone consult!!
I have never seen prof matthias, but his team were horrible
the way they treated me because of the ME was so bad. And the things they said so ignorant!
Does anyone in the UK know of any good POTS drs down south? ones who would be ME friendly or at least open to helping with more diagnosis.
Am desperate for more help and so severely ill.
A x
3 years later and have only just been sent prescription!! it took a year before they took me in for tests, then bought me back for one more 6 months later. Then 7 months later finally had phone consult!!
I have never seen prof matthias, but his team were horrible
the way they treated me because of the ME was so bad. And the things they said so ignorant!
Does anyone in the UK know of any good POTS drs down south? ones who would be ME friendly or at least open to helping with more diagnosis.
Am desperate for more help and so severely ill.
A x