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Hopefully the title is pretty self-explanatory I do get PEM from exertion while laying down, but some people don't ... so I'm curious to see what the general experience is.
Also, links to any research in this area would be great, if anyone knows of any.
In my case I notice a distinct difference between PEM and OI symptoms - namely, the OI hits immediately, whereas the PEM is a delayed effect. OI symptoms go away after an hour or so of laying down, whereas PEM sticks with me for days.what i mean is that many of the symptoms of PEM may be due to being upright rather that just the exertion
i notice if i stay in bed for a few weeks my symptoms dissipate
but if i am up - even with NO exertion I will crash
Good point ... I can get pretty stupid when the OI has kicked in Usually other people then have to tell me stop what I'm doing and go rest.I think there is less danger of overdoing when lying down. Since you aren't putting the energy into staying up right, there is less to distract you from realizing it is time to stop....
if you are referring to my post about PEM bing caused by being upright - i do not mean just lying down and doing the exercise will not cause any PEM
what i mean is that many of the symptoms of PEM may be due to being upright rather that just the exertion
i notice if i stay in bed for a few weeks my symptoms dissipate
but if i am up - even with NO exertion I will crash
so this poll is not going to address the point i am makinng - you woud need to rest the peole horizontal for a few weeks THEN do the exercise lyig down
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In my case I notice a distinct difference between PEM and OI symptoms - namely, the OI hits immediately, whereas the PEM is a delayed effect. OI symptoms go away after an hour or so of laying down, whereas PEM sticks with me for days. .
My Post exertional symptoms always include a sore throat and glands so I am assuming that I am seeing either the immune activation that the Light's and others talk about.
I don't get this with my POTs. The POTs for me is immediate and is also resolved by lying down.
Dr Ramsay spoke about the post exertional feature of his original ME patients and this was through what he described as a trivial amount of exercise.
For me, lying down exercise is just as bad. I've tried the plates and the "passive" exercise machine. Exercise in water and had a tutor at home for lying down yoga. I do agree that I can do a little bit more at the time because the added burden of fighting to stand up isn't there. So for example doing a yoga pose in a prone position to a standing one. However, the PEM malaise still kicks in afterwards and for days or weeks in bad cases.
Have any of you connected this to the "exercise within your heart rate" regime that Dr Klimas was on about?
Isn't crashing the next day, by definition, post-exertional malaise?i will certainnly crash next day but will NOt have PEM form that usually.
Isn't crashing the next day, by definition, post-exertional malaise?
What you refer to as a "crash" is OI. I think most ME patients use "crash" to refer to the onset of PEM.for me PEM is muscle aches and pains and other symptoms and often does not start till 24 hours after the exercise; i is quite distincitv eand lasts a few day s usually - 3- 4
for me this differs fform a crash which can come on at any time it seems - brain fog , feel unweel ..
nnot sure it the two have been separated or stidied separately but i ge a differetn reaction and kind of malaes after exercise thatn i do inn a "normal crash" which has degrees of seveity
if they are the same thin g why od we have the two didfferetn terms?
Symptom flare is another term i have seen used.
maybe PEM is seer crash ;us muscle pains
coconnut water will help me out of normal crash quicly but not out of PEM - and it never respoves the muscle pain.
It's something I want to try sometime. But I have trouble with standard heart rate monitors, because the contact has to stay wet (usually from sweat) to keep getting readings. And if I'm working hard enough to sweat, I'm way past my limit of triggering PEM alreadyHave any of you connected this to the "exercise within your heart rate" regime that Dr Klimas was on about?