I think some people can get bogged down and start taking too many things. Maybe they were already taking things before they got here, or maybe they feel they need to add certain supplements based on a prior diagnosis.
If I were starting over, I would advise someone to stick to the exact protocol for a few months and titrate the b12s and methylfolate before trying to add too many supplements. Go back to zero with the thought of methylation causing ALL of your symptoms. Treat only with the supplements in the protocol. If you don't improve by altering the basic protocol after 6-12 months, then maybe consider adding things from other protocols or other sources or moving on....
There are just too many unknowns to start adding things and many people have been 100% cured by just what's in the protocols. Maybe some people need cilantro or milk thistle or other supplements, but I think it's more about accepting or even embracing the symptoms as signals and working within the protocol. Don't try to cover up the symptoms with other supplements, cure them with methylation supplements.....
Of course this is my philosophy based on curing my wife and everyone is different and should not ignore any life threatening symptoms. I can't imagine a sick person trying to figure this out on their own. So keep it simple, addition by subtraction, and any other cliche sayings apply....
Hi Red,
I agree a whole lot with you here. I found that the people who have good results have followed the protocol quite exactly. There are so many confusing things. Even "titrate" can be misleading if person 'A" means rapid titration and somebody else interprets it as slow titration and then is upset it doesn't work.
but I think it's more about accepting or even embracing the symptoms as signals and working within the protocol. Don't try to cover up the symptoms with other supplements, cure them with methylation supplements.....
I would expand that to dealing with partial methylation block, partial ATP blockage and methyltrap. Without having these fundamental things working everything else is chasing ones tail in circles. When dealing with paradoxical symptoms and everything one takes affects the prior things all ready being taken, the structure of supplements being built is fully interactive.
One must be able to distinguish the many varieties of response and work with each set of symptoms appropriately. When the choices towards healing are made, the response is quite prompt and moving in the right directions. When the hypothesis a person is working on takes them in the wrong direction all sorts of things happen and continue indefinitely. Be careful of NAMES of things.
Of course this is my philosophy based on curing my wife and everyone is different and should not ignore any life threatening symptoms. I can't imagine a sick person trying to figure this out on their own.
I can't imagine that either. This FMS/CFS/ME problem has everything stacked against anybody figuring it out, especially those with the brainfog. Such a person has to be willing to go against the AMA and medical industrial complex on vitamins, they have to go against 60 years of research showing why folic acid and CyCbl/HyCbl work microscopically and detectable by sensitive enough tests, despite their miserable human whole body rate of effectiveness and they have to be willing to go against many of the theories of the medical counter culture developed over the past 100 years.
As the understandings and misunderstandings of the past 60 years have not only allowed the 21st century mystery disease to occur but appears to have encouraged it, to find a cure one must step outside the context of the context of the medical industrial complex and outside the equally failed understandings of the medical counter culture.
cure them with methylation supplements.....
Partial methylation block can't normally happen in the presence of MeCbl and l-methylfolate. Other aspects may contribute but appear to usually come on as a consequence of failed methylation. As this alone can start up hundreds of biochemical processes all at once, decades of stalled or failed healing being present, the startup is ragged. However, with partial methylation block or methyltrap, without methylation startup, nobody is cured. That is the most fundamental thing. Anything that doesn't start up methylation allows damage to continue increasing day by day. That is a defining characteristic of MeCbl/l-methylfolate deficiency, nothing else works. Some less active cobalamins or folates might work to some degree but as far as I've observed, outright healing very rarely occurs without MeCbl and l-methylfolate. CURED/HEALED is not the same as "some improvement".
It's been quite a road. Your wife was fortunate to have somebody helping her in all this. I'm sure that you both have had to learn a lot. Good luck.