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Years ago I used to talk to many CFS patients, at various meetings and conferences I used to go to. They do exhibit a bit of narcissism and tend to drone on and one. All you have to do is ask is: so how are you doing? The result is a ten minute monolog and exclamation of victimhood. There is no internal filter on what might be too much information for a given situation. It prevents a rational exchange over what might be wrong with the patient. To patients visiting doctors: I have suggested they prepare a prioritized list of symptoms and not just unload, sometimes out of emotion, overwhelming a doctor, with myriad, sometimes contradictory symptoms. This will certainly get you the reputation you so fear in your previous post.
Making sweeping generalizations about a population of people is very dangerous.
If I am reading you correctly, you seem to believe that people with CFS have no internal filters, can't engage in a rational exchange, have narcissistic tendencies, have a tendency to drone on and on, and are tone deaf and unable to let others speak. That seems quite insulting to me. I know people who don't have ME/CFS who have no internal filters, who go on and on about things, who won't let others speak -- it's not something that is unique to our population -- it's a human thing. I think it's unfair to further stigmatize our population with these sweeping generalizations. In the long run it hurts us because it just gives those seeking information to hurt us more ammunition to prove their negative opinions about people with ME/CFS.
Being at a conference is a bit different than going to the doctors. If it is a conference for people with ME/CFS than those attending would understand what others are going through. One would be more likely to talk openly and freely about their symptoms etc when asked in this situation. Most of the patients I know go to the doctors armed with a list of prioritized symptoms and it's the doctor that starts banging on about stress, anxiety and all that crap. Generally, people with ME/CFS already have a reputation before even seeing a doctor if that doctor knows they have a diagnosis of ME/CFS and if you walk in with a prioritized list, you get the label of neurotic etc. And where do we get this reputation from: in part, from having all this negative stuff written about us and repeated over and over with absolutely no proof whatsoever.