I want to get tested for Pernicious Anemia. I've had pretty much all the symptoms for 7 years. Most concerning of all, to me, is brain damage (and tachycardia).
I get about 950% of the Recommended Daily Intake of B12 naturally through my diet, as well as 250% of folate.
Because the brain damage hasn't improved, it must mean that my body is unable to absorb the B12 I eat, right?
I can't afford doctor's visits (not even regular checkups).
I'm not on medicaid or any sort of assistance.
There are no online lab testing locations near me.
1 - Is there a way I can get a test or diagnosis so I can get those B12 injections?
2 - Does anyone have information about B12 sub-lingual efficiency compared to injections, when there is neurological damage already?
I'm in Maine, near Augusta.
Thank you for your help!
Hi June,
Where near Augusta? I was a Sugarloafer (ski patrol) for a while and summered at Lake Megunticook near Camden or Shapleigh for the first 25 years of my life. I worked one summer at The Lobster Pound.
I'm the ONLY person here who claims to have healed ME/CFS/FMS and largely reversed 15 years of Subacute combined degneration. I was falling and perhaps a few weeks away from a wheelchair with what I was doing. I had hot and cold multi sensory hallucinations, memory problems, cognitive problems, word finding problems, depression, mood and personality changes. Everything but psychosis or dementia. Now mosrt all of it has been reversed and I'm perhaps 6 months of not enough 5 star MeCbl from a wheelchair, at the rate it was going at the end. I'm still ataxic in the dark but I can balance on one leg, with my eyes open in the light, and work on roofs etc.
2 - Does anyone have information about B12 sub-lingual efficiency compared to injections, when there is neurological damage already?
I do. I corrected most of it with sublinguals and curtently maintain remission and further healing with sublinguals. Sublinguals to correct CNS damage, if it can happen for you, will cost $6 to $11 dollars a day. The injections were costing $450/month form the pharmacy. The Metafolin could cost $2.50 a day. Everything else can likely be done for $1/day total. However, one doesn't start there. One can start at maybe $60/month. There will be substantial changes before it goes beyond there.
I have done it and am maintaining it. I have had a couple of major setbacks, glutathione was one and when Jarrow MeCbl went bad was another. So far I have mostly recovered from those. Setbacks are expensive.
One other thing, if it has a chance of working you will know likely within hours of the first dose if you take a 1mg first dose. It can be rugged. Neurological healing is painful and disturbing as everything starts changing and doesn't stop for perhaps 1-2 years. However, that might not start until there hasd been six months of body and peripheral healing to the point it can support neurological healing. When the neurological healing period there appeared to be a cahnce to "relearn" emotions and all sorts of things. One has to direct ones thinking to not get caught up in all of ones fears or it molds the changing brain with that as it's reality, or at least it seemed to me in going through it and observing others. Hallucinations, blurry vision, alterations in senses,, dimming, confusing, tastes and smell alterations, all can change in the first hours for many and continue changing towards normal. Functional items change in hours to weeks. Healing takes weeks to years. It is a journey of 10,000 steps and every one of them is a different way to not yet be healed.
