- Messages
- 36
- Location
- My bed, if im lucky my couch.
Hey all,
First post of this forum. Im 22, and have been sick with ME/CFS since coming down with mono at 19. (Didn't know i was supposed to rest after mono, was playing a sport, which required heavy conditioning, at a competitive level and continued training when i should have been resting, crashed and never recovered).
Over the last year, maybe longer, ive had a weird symptom pop up, and i finally decided to post about it.
When i am resting (sitting or laying down) i will have a sudden, intense shortness of breath. It feels like someone snatched the air out of my lungs. I inhale deeply and feel fine. It happens every few months, but is very disconcerting. Ive had EKG's and ultrasounds of my heart done since being sick which have all come back clean, but none recently. I take daily multivitamins as well well as D-3.
Ive taken valcyte and am currently on my 4th infusion of rituximab, so i have my liver and kidneys tested regularly, and they seem to be fine.
Is this a common symptom? Should i go see my local doctor and get another round of heart checks done? Like i said it goes away immediately and i dont feel any worse than i usually do after, so up to this point i have chalked it up to another annoying, but not dangerous, symptom of this illness. Again it feels like i suddenly have no air in my lungs, and i have to inhale deeply, and it usually causes me to panic a little, despite not feeling anxious at all prior to the event.
Thanks,
M.
First post of this forum. Im 22, and have been sick with ME/CFS since coming down with mono at 19. (Didn't know i was supposed to rest after mono, was playing a sport, which required heavy conditioning, at a competitive level and continued training when i should have been resting, crashed and never recovered).
Over the last year, maybe longer, ive had a weird symptom pop up, and i finally decided to post about it.
When i am resting (sitting or laying down) i will have a sudden, intense shortness of breath. It feels like someone snatched the air out of my lungs. I inhale deeply and feel fine. It happens every few months, but is very disconcerting. Ive had EKG's and ultrasounds of my heart done since being sick which have all come back clean, but none recently. I take daily multivitamins as well well as D-3.
Ive taken valcyte and am currently on my 4th infusion of rituximab, so i have my liver and kidneys tested regularly, and they seem to be fine.
Is this a common symptom? Should i go see my local doctor and get another round of heart checks done? Like i said it goes away immediately and i dont feel any worse than i usually do after, so up to this point i have chalked it up to another annoying, but not dangerous, symptom of this illness. Again it feels like i suddenly have no air in my lungs, and i have to inhale deeply, and it usually causes me to panic a little, despite not feeling anxious at all prior to the event.
Thanks,
M.