Am going to be seeing an endocrinologist next week because I was referred to her by an oncologist/hemotologist at MD Anderson. He's suggesting I have further investigation because of my very high norepinephrine level of over 1400.
I have hyperadrenergic POTs, and he's not discounting that, but said there are cancers other than pheo's that have a high NE as a hallmark.
Personally am not too concerned about cancer, although I think further investigation is wise, but I also want to use the opportunity with this doctor to try and see if she can help with HPA axis issues specific to CFS.
My plasma cortisol is low, and I also have Hashimoto's thyroid disease, (an autoimmune disorder) and am wondering if anyone has any ideas of what to ask regarding HPA axis function in CFS? Tests, treatments?
Has anyone had any success working with an endocrinologist on this, and if so how were you helped?
Am cautiously optimistic, as this doctor is Indian and trained in India. For some reason I feel that may be an advantage.
Any thoughts would be appreciated. Am trying to put together questions for a Wednesday appointment.
I've done some research and bookmarked a number of scientific articles, but am more interested in learning what CFS patients who have tried to explore this with an endocrinologist have experienced.
Thanks in advance for your thoughts.
Best,
Questus
I have hyperadrenergic POTs, and he's not discounting that, but said there are cancers other than pheo's that have a high NE as a hallmark.
Personally am not too concerned about cancer, although I think further investigation is wise, but I also want to use the opportunity with this doctor to try and see if she can help with HPA axis issues specific to CFS.
My plasma cortisol is low, and I also have Hashimoto's thyroid disease, (an autoimmune disorder) and am wondering if anyone has any ideas of what to ask regarding HPA axis function in CFS? Tests, treatments?
Has anyone had any success working with an endocrinologist on this, and if so how were you helped?
Am cautiously optimistic, as this doctor is Indian and trained in India. For some reason I feel that may be an advantage.
Any thoughts would be appreciated. Am trying to put together questions for a Wednesday appointment.
I've done some research and bookmarked a number of scientific articles, but am more interested in learning what CFS patients who have tried to explore this with an endocrinologist have experienced.
Thanks in advance for your thoughts.
Best,
Questus