At certain points my blood pressure was 143/91 on the day I called 911 to go to the ER. The next night, I had a 94/62 reading. The next day, I had the 2nd ER visit when I had a blood pressure of 133/91 and 65 bmp. Normally, my blood pressure is at around 96/64 for a while, but I didn't have these negative symptoms back then. I use a WelchAllyn upper-arm cuff BP monitor and I've been monitoring the low BP for about a year. This is a dramatic change for my body. And it quickly happened.
I could only sleep for a few hours a night (about 4 hours) and the whole day I'm totally wired and alert, maybe even restless. I want to sleep again but I can't seem to fall asleep; I just don't feel sleepy. Mood wise, I'm keeping calm, laughing, and engaged by watching lots of my favorite comedy series on Netflix- it helps to distract me from the symptoms and it's fun!
But what's not fun are the other symptoms: feeling like my head is full of pressure, shortness of breath, labored breathing, very fatigued, sometimes feeling like blacking out, my neck is tight, my neck feels like someone is choking me out but I can still breath (maybe it's the blood vessels in my neck constricting and/or it's because of my resting BP, the diastolic pressure), sometimes I'm dizzy, tingling in my fingers and at its worst my toes as well, my heart feels heavy and like its working too hard even while resting, my chest feels tight, my body is slightly to moderately shaky (but not from any negative emotions bc I'm still smiling while watching my shows and still slightly shaking), sometimes my throat gets tight and I have a hard time swallowing food like I normally do, pounding inside my upper chest area, my eyesight gets slightly blurry or slightly fuzzy (I wear contact lens designed for astigmatism), my eyes feel pressure or warm, my teeth feel crowded and pressured especially the upper front teeth and oddly also it feels like when sucking on own teeth, my lips and tongue feel tingly, my hands and feet are cold but my body and neck and head are hot, can't focus like I normally can, and I keep on waking up with only 4 hours of sleep and can't nap. At first, the weird and seemingly dangerous internal physical sensations caused my bmp to spike from being nervous and anxious about all the suddenly new bodily sensations, but since the 1st ER visit, I've recognized the sensations/symptoms are not an immediate threat, and so I keep calm with comedy shows, breathing exercises, mindfulness techniques, meditation, and constantly texting with friends and family.
Currently, I found that if I stay in my air conditioned living room at 68 degrees F and try to lounge on my couch up against the couch's arm, I can kind of tolerate these horrible symptoms. The intensity of my symptoms goes up higher as the temperature moves above 70 degrees F. Also, I noticed that if I slowly drink very cold water, my symptoms temporarily improve and feel better, especially with my head, lower neck, and chest/heart regions.
I was taking Sam-e because I assumed I was undermethylated and had high histamine. I thought that because my seasonal respiratory allergies turned year round, and I’m highly adversely reactive and intolerant of fermented drinks and food, amongst other indicators. I’ve been trying to help myself by taking digestive enzymes when eating, and taking supplements for 4 months such as P-5-P (B6), Vit C powder, magnesium, Zinc, glutamine powder, inositol, taurine (, MSM powder, gaba, and sometimes NAC, along with Zyrtec and Benadryl everyday (I haven’t been sleepy with 3 caps of Benadryl (25 mg each) for the past 1 month). Last 3 month, I was also talking 5-HTP, and tyrosine only in the morning. Last month, irregularly taking B1 (thiamine 100mg) and niacinamide (500mg).
The last week before my ER visit, I started taking a good amount of Alpha Lipoic Acid (thioctic acid 300 mg, sometimes 2x a day) with Biotin (330 mcg, sometimes 2x a day) , Creatine powder (around 3 grams a day), and 400 mg of that new brand and higher dose of Sam-e everyday. They were all new supplements. I noticed that I was having diarrhea for every bowel movement everyday and I couldn’t sleep much sometimes staying awake all night during the whole week- that insomnia progressively got worse. I did notice my BP sometimes was rising a little bit during that week and I was pleased, thinking maybe adding the new supplements helped the regimen. The night before my 1st ER visit, I couldn't sleep at all. And on that Monday, that's when I had to call for an ambulance right after driving my car for a few minutes in 95 degrees F weather.