Firestormm
Senior Member
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So Harriet Hall uses Katie's blog as an agenda piece for her organization without knowing too much cocerning ME/CFS based on her comment about Katie's blog and on Dr. Kogelnik.
I didn't read it like that Eco. The only reason her blog was 'singled out' was because she had claimed she was involved in a 'pilot study'. If she hadn't made this claim, I doubt very much if it would have been linked to. I suppose you could say that - as this claim has subsequently been said to have been a misunderstanding on Kati's part - Katie's experience should have prevented her from saying so in the first place.
Regardless, the blog of Dr Hall's has raised some interesting points I think. It got me thinking about Rituximab and whether or not prescribing it now might indeed be seen as 'jumping the gun'.
MORE than that though it has aired some views about Rituximab and some concerns. And there have been - to my mind - some interesting contributions on this thread (and in the comments beneath the article). It has certainly made me think and that's a good thing as far as I am concerned.
There were no judgements made about Kogelnik or those taking his treatment. What I would consider appropriate questions have been raised and if answered, they would only aid all our understanding. The situation with Rituximab can only be resolved with more funding for these trials and research into understanding why this drug might be improving the circumstances of those with our diagnosis.