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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I'll have to check when I am at home. I do not know the brand name. But I get it from www.heartfixer.com and it is 25mg only, which is hardly enough for anything. I just keep it for emergencies because BH4 is required to make your kidneys work (get rid of ammonia by producing urea).
I rely on raising BH4:
- methylfolate (I take Solgar, also whatever is in 2 Thorne Basic B)
- Vitamin C (mineral ascorbates, I take 2g)
- I am COMT +/+. Someone else may need a COMT inhibitor, like Rhodiola
Careful with C...some people have had serious kidney stones from taking >500mg. I believe taking calcium citrate may prevent that. Certainly I have takn 2g C for 30 years with no ill effect, but remember, I take a LOT of supplements, and thus am not likely to have any other synergistic deficiency which must be in effect to cause the stones. (The deficiency I suspect is citrate and there are studies that calcium citrate helps protect the kidneys).
I don't think you have to be a patient - it s not prescription. I just phone them to order. But I go down in person every 4 months and can pick it up then. I have ordered it for my father so I know they can do it by mail.Thanks! Can you order on their website or do you have to be a patient? I couldn't find it on their webpage.
Careful with C...some people have had serious kidney stones from taking >500mg. I believe taking calcium citrate may prevent that. Certainly I have takn 2g C for 30 years with no ill effect, but remember, I take a LOT of supplements, and thus am not likely to have any other synergistic deficiency which must be in effect to cause the stones. (The deficiency I suspect is citrate and there are studies that calcium citrate helps protect the kidneys).
I don't think you have to be a patient - it s not prescription. I just phone them to order. But I go down in person every 4 months and can pick it up then. I have ordered it for my father so I know they can do it by mail.
If you want it by perscription, it is called kuvan. Kuvan is very expensive. But if you can be shown to have high phenylalanine (due to lack of BH4) then your insurance might prolly cover it. I make sure not to take any supplements with phenylalanine in them. I do supplement tyrosine for my thyroid (takes 1 BH4 to make either dopamine or thyroxine out of it). Phenylalanine takes 2 BH4s to make anything out of it.