Oh, hey, glad to hear you have so many people around you who were significantly helped. Thanks for sharing that info. And wow, seams like a pretty strong genetic component there in your family. I have heard that the time you receive treatment is crucial which makes sense for any illness really. The reason why breast cancer has such a successful cure rate is due to early detection and treatment.
Where they heck did you guys get valcyte though? Did you see Dr Peterson? My doc tried one very mild anti viral, the one for herpes, can't remember the name, not important, way back 15 years ago, but of course, it did nothing. When I saw Dr P talk, he mentioned that they had tried that drug too and found it ineffective. I certainly think I had a good doctor back then but he only could do so much and most docs I've ever asked about valcyte are way too scared to try it. I don't blame them either as they don't want to cause liver damage etc and don't have experience using the drug.
It's all such a mystery just due to lack of research $. I do find that those who are mildly effected are, of course, way more likely to find things that help them or to get much better. I had an acupuncturist tell me that patients with CFS and fibro were harder to help. That's what I have. Who knows! I remember back when I was young, so sick and so broke and desperate, reading everything I could find. And I would read one thing to do with fibro and then read the opposite thing to do with CFS, like exericse for example. Oh, god, such dark days thinking back on all that. Thank goodness those days are gone.