the neuroinflammation up my spine and into my head, the lesions on my brain -- those are very clearly signs of autoimmunity, the way my body is always wired and i don't get colds, and when i finally do get colds i actually sleep -- all very much signs of autoimmunity. i'm happy about this paper but we all know that where we are in the me research right now is way ahead of where these scientists are: namely, we all know here already that there are definitely subsets of patients. some might be totally in the autoimmune camp (I know I'm one) and others may not, and the people studied for this probably are not. And that's fine. But it's very dangerous for us to have researchers like these saying what ME definitely is or isn't when a) they're not right, not across the board and b) ME 100 percent isn't one thing. And if the public believes it is, then every time some new paper saying this is exactly what ME is comes out, we're going to be at the mercy of the public's reaction to that one paper. that's why the XMRV fiasco was both so compelling and then so very defeating. we can't repeat that. the public needs to understand the multifariousness of this disease so that we're not doomed to repeat their sudden interest and then disinterest, so that people stop speaking for us who don't have the authority to...
I really hope people on here feel the way I do about this...i'm so tired of every one jumping on one thing, like this is gonna be the thing. i mean, i know for me, i'm looking toward the autoimmunity stuff, toward b cells, toward rituximab, yes. but i know my reality, while very complicated, is just my reality. and while others may share it, they may only share parts but not the entire whole and that still others may be very different...